ivy @writtenbyivy - Tumblr Blog

my thoughts, feelings, and experiences. written by me, ivy!

summing up my life in text form as best i can. my body and mind are difficult, and i wanted a way to journal it for me to look back on. hoping it can help someone else along the way, too.

whoa she’s returned (maybe)

college and work are killing me this semester but nevertheless she persisted

#living with disability #living with chronic illness

khloethecatsworld

Trump basically declared disabled people ‘unfit to work’ as he put it by revoking the Equal Employment Opportunity Law of 1965. It means employers no longer have to legally give accommodations to disabled employees. This will render so many Americans jobless and barely anyone is talking about it because disabled people like me are treated as expendable.

felis-the-complex-multiple

Please don’t comply in advance. Trump cannot revoke the Equal Employment Opportunity Act because it is a law passed by Congress. Executive orders are issued in accordance with laws already passed and must follow the U.S. Constitution. While they are enforced with the same power as a law, executive orders are not new laws, and as such can be challenged by the courts to assess whether they are legal and constitutional or not.

It is true that Trump revoked several executive orders that were issued to strengthen or expand the Equal Employment Opportunity Act. Whether or not these EOs will be enforceable long term remains to be seen.

However, it is blatantly untrue that employers no longer legally have to give accommodations to disabled employees. Trump’s EO does not affect equal employment requirements and protections for persons with disabilities. Many protections for persons with disabilities are established by law, including the Americans with Disabilities Act, Section 503 of the Rehabilitation Act, and the Randolph-Sheppard Act. [Source]

Specifically, Title 1 of the ADA requires employers with 15 or more employees make reasonable accommodations for persons with disabilities. This has not changed. Trump cannot change anything about the ADA with an EO. Trump is attempting to dismantle the Equal Employment Opportunity Commission (EEOC), which will likely have impacts on disabled employees. Its mission is to eliminate unlawful discrimination in the workplace, and to investigate alleged instances of discrimination, which will no doubt be impeded by Trump’s anti-DEIA mission.

But the ADA and all other disability related legislation are still in effect. You still have a right to reasonable accommodations and a discrimination-free workplace. Trump may try to impede that right, but not even he has the single-handed power to revoke it.

#it is a scary time to be disabled #but we must continue fighting #for ourselves and for others

tw heavy topics (see tags)

i don’t know how many good days i have left in me.

i’d never do anything to actively end my life, i’m past that point of my depression (thankfully). but i think i’m passively suicidal. if something happened, i don’t think i’d be upset. i don’t think i’d try to stop it happening. i don’t think i care enough.

i’m just so tired. i’m so so tired. i want to sleep as long as i can. i want to sleep and not have to wake up. i don’t look forward to anything anymore.

it’s hard to hear that i just “don’t deal with things as well because of [my] other issues” and that i’m just sensitive or had a low pain tolerance. i’m so tired of not being taken seriously. i know something is wrong with me.

it’s hard to know that other people are able to do things i’d give anything to do. it’s hard to know that there are people my age who are able to have a normal life and live independently and have a job and go to class and have friends and go on dates. i want that for myself. it’s hard to feel like i’m falling behind even my younger brother.

i feel like nothing matters and nothing is fun and nothing is interesting. i just want to sleep all day.

i don’t enjoy the things i used to enjoy. i just feel empty.

#cw vent #cw death #cw sui ideation #cw depression

i got out of bed today. i went outside with my dogs today. i packed my mom’s lunch for work today. i had breakfast today. i drank water today. i took my meds today.

i did what i could do today, and that’s enough.

#living with disability #disabled #living with chronic illness #chronically ill #disability

fidoughfaunus

Chronically ill people be like “I know a place” and it’s literally just their bedroom floor with the good blanket.

having a bit of a rough patch, but nevertheless, she persisted.

i feel like giving up sometimes, and i’m in the place right now. it’s so easy to decide i just want to stay in bed and ignore the rest of the world.

i’m hoping tomorrow is better.

#living with chronic illness #living with disability #chronically ill #disabled

oistrong

This is very important...

writtenbyivy

id: a tweet from user ryan honick that says: “i don’t know who needs to hear this but the “i never let my disability/pain/illness stop me” is an ableist and harmful narrative. sometimes chronic issues are debilitating and they do stop you. and you shouldn’t be made to feel guilty about it. period.” end id.

vent/rant

i want to cry. i feel horrifically ill for the seventh day in a row, i made it to one singular day of classes last week, i have an exam on wednesday, and i don’t know what to do. i feel like i’m falling apart and i don’t know how to stop it.

#living with chronic illness #living with disability

kelpology

being disabled will really have you thinking/saying things like “yeah i’m not really THAT disabled. as long as i take my meds twice a day (and as needed), eat and drink exactly the right things, keep the perfect balance of being active and resting, the weather is stable, and nothing unexpected happens AT ALL… i’m totally FINE! i probably should not even call myself disabled at this point because i’m doing so well!”

if you don’t want to call yourself disabled, that’s fine and it is your choice! but if you’re only “fine” or “doing really well” when a bunch of different variables are all lined up perfectly, then maybe you are not fine actually. just a thought!

heba-baker

Hello 👋

Vetted by @90-ghost

Link

Hello, I am Heba Al-Anqar, 21 years old, a university student. My university was suspended due to the war. I am writing about my family: my father Bakr (54 years old), my mother Alaa (46 years old), and my sisters Aya (18 years old), Amal (15 years old), Muhammad (13 years old), and Maryam (8 years old). We have faced many challenges in this war, from the destruction of our home to the famine we continue to suffer in northern Gaza.

My father suffers from heart problems. He had open-heart surgery when he was 36 years old. He also suffers from cartilage problems. He had his pelvic joint replaced about two years ago, in addition to other health problems. He cannot work due to his health condition.

My mother also suffers from asthma and shortness of breath, in addition to the difficulty of obtaining treatment due to the conditions and the war.

This is our house, which was destroyed by war

We have become homeless in places of refuge, in addition to the difficulty of obtaining medicine, food, and daily expenses

I created this account to request your help in this difficult ordeal by donating to meet the necessary needs, as we were relying on social assistance before the war.

My goal is to help my family live in safety and provide the necessary necessities for living, as there is a high cost of living and difficulty in obtaining necessities. We ask for your help in leaving the Gaza Strip to save my family’s life. The cost of travel is $5,000 per adult and $2,500 per child, in addition to travel and accommodation expenses of $500 per month.

Together, we can support Heba and her family through this ordeal. Your donation, no matter how big, can make a difference in my family's life to get life and start a new life

Hello, I am Heba Al-Anqar, 21 years old, a university student. My universi… Heba Alanqar needs your support for Help heba and his family to

If you are looking to support Heba and her family, please consider providing assistance directly or through relevant charitable organizations.

#no image description

hazemsuhail

Emergency: Help my family survive and start a new life

Hello everyone, I hope you take a minute to read our story.

I’m Hazem Shawish, trying to save my family from the war

We’re a family of 8 members, me, my mother, and I have 4 brothers and two sisters. And their kids

Islam (30) years old

Samer (29)

Hashem (31)

Mohammad (35)

Nisreen (37) ( @nisreensuhail )

Noor (36).

Kids:

Amal (12)

Kenzy (17) ( @kenzish )

Zoheer (19)

Hello everyone, I hope you take a minute to read our story. I’m Ha… Hazem friend needs your support for Help my family survive an

In the shadow of conflict, our family has faced unimaginable hardships. The passing of my father, a victim to the cruel grasp of hunger and inadequate healthcare, left a void in our lives, underscoring the fragility of our existence here. My brother, Samer, battles bipolar disorder, a condition exacerbated by the ongoing war and the severe shortage of essential medications. Without access to the necessary treatment, his life is at risk, and we live in constant fear for his well-being amidst the chaos that surrounds us. These personal tragedies have deepened the urgency of our situation.

My brother Samer

Every day is a struggle for survival, and each night is filled with prayers for a brighter tomorrow. Yet, amidst the darkness, we hold onto hope, seeking solace in the belief that one day, the clouds of war will dissipate, and we will find the peace and stability we so desperately crave. Until then, we endure, clinging to the threads of our resilience, and nurturing dreams of a safer, healthier future for us all.

Our home, once a sanctuary of love and warmth, was destroyed, displacing us into a life of uncertainty and fear. The laughter of my children and my sister's daughters, once the music of our home, is now silenced by the echoes of conflict. They deserve a future where education and happiness are not just dreams but realities.

Our entire neighborhood In Gaza Before and after

we had a supermarket that helped as to live and earn money, but it was bombed and we have nothing now, pic of our supermarket

But our challenges are not just physical; they are emotional and psychological. The loss of my father and the imminent threat to my brother's life weigh heavily on us. My mother, who has endured so much, faces the unimaginable fear of losing another child. For her, for my brother, for my children, and for the future of our family, we seek a new beginning.

We dream of a place far from the sounds of war we want to be safe with my family we dream to move to Egypt to save ourselves

This journey is more than a physical relocation; it is a quest for dignity, for normalcy, for the very essence of what makes life worth living. We seek to restore what conflict has stripped from us: our home, our health, and our hope.

We turn to you, not just as donors, but as fellow humans who understand the power of compassion and community. Your support, in any form, is a beacon of hope in our darkest times. It represents solidarity and a shared belief in the sanctity of life and the right to a safe and peaceful existence.

Our dream is simple yet seems a world away:

to escape to Egypt .

for children to pursue education and a life unshaded by conflict, and for us to honor my father's memory in a land of peace.

However, this dream bears a significant cost, one that is beyond our reach. For each of us to make this journey, to cross borders towards a life of safety and dignity, we estimate the need for at least $5,000 per person. This sum covers the complex tapestry of legal, travel, and initial resettlement expenses.

All of our important links are here

Emergency: Help my family survive and start a new life

Thank you for hearing our story, for your empathy, and for considering standing with us as we embark on this journey to a new life.🇵🇸🍉❤️‍🩹🙏

With heartfelt gratitude,

Hazem Shawish

Note:

My account vetted by :

@dlxxv-vetted-donations

(vetted)

@a-shade-of-blue

#no image description

blindcultureis

You don't need to be blind to use audio descriptions and I even encourage sighted people to, especially people with things like autism or migraines that make watching things hard! If you ever have a hard time telling what's happening on screen, audio descriptions might be helpful to you . Audio descriptions tell you what kinds of facial expressions and body language a character has, important visual details that shouldn't be missed, and make action scenes a lot less confusing and disorienting. If you are someone who doesn't like live action because it's hard to understand, try out audio descriptions! More demand means more audio descriptions will be written for new and old media, it only helps us.

vizthedatum

An apparently unpopular opinion: disabled people can have and do their hobbies. They deserve to have fun. They deserve to live their lives.

Their inability to do some things (like work, for example) does not mean they should be judged for… idk hanging out with their friends or to going outside. After all, having interests outside of work is often essential to our mental and physical health OUTSIDE of our disability.

And also *you might want to sit down for this* disabled people know what’s disabling for them (unless they people-please or push through due to necessity or survival of some sort). Disabilities don’t have to be visible or persistent to be disabling.

So yeah - my declaration: if an activity you want to do feels good and you’re able to do it, then do it. REGARDLESS OF YOUR DISABILITY WITH OTHER THINGS.

it’s been a hot minute. things are still…not ideal. i have a job now (technically it’s an internship, but i’m getting paid so i’m calling it a job), which is cool, but i still have unresolved health stuff going on.

tw for food, weight loss and eating issues (no calorie counts or specific weight)

#living with chronic illness #living with disability #tw eating issues #tw food

my body hates me i think. i have been feeling so ill for the past few days and i can’t get an appointment with my gi doctor until may so i kind of just have to wait it out…i’m missing classes and other things i want/need to do because of this :/

#living with chronic illness #living with disability