hey uh. i dont usually do things like this but, here we go.
heya, my name is mel ! before you scroll just know that im not asking for money or anything like that, please take a minute to read this.
as some of you know, i was in the hospital for a few days in january. i havent talked about it too much since, heres what happened.
so, i have this super, super rare blood disorder called paroxysmal nocturnal hemoglobinuria (PNH) and it effects my life constantly. i cant walk more than a few blocks without feeling weak, winded, sick. i get headaches, im prone to things like blood clotting and leukemia, i have severe anemia, etc. im at the hospital every week receiving the most expensive drug in the world, the only way to put it off and treat it. on top of that, ive gotten ~10 blood transfusions this year and i see more in the future.
my family has put their lives basically entirely on hold to be around for me. as you can imagine, this isnt the ideal situation for us.
now, as i said, im not going to ask for your money or anything. i would feel bad, that’s not what i need at all. there will be an option for that, though, if you cant help/would rather help that way.
here is the important part: the only known cure for PNH is a 10/10 bone marrow match
im white and usually this wouldnt be such a big issue, but i have ashkenazi jew ancestry, and its been a big obstacle in finding a bone marrow match for me. so here is what i ask of you
https://join.bethematch.org/hero4hero
^^^ this link ^^^
this link leads to the service that you can use to see if you can cure me.
for free !!! all free ! they send you a free swabbing kit, and free envelopes for sending the swabs back. they ask you a few questions, but thats all and you dont have to pay any money at all.
even if you cant save my life, maybe you can save someone elses. so please, please, please, reblog this post.
and if you can, see if you can be my match. its the best thing you could do for me and my family right now. thank you so much.
and if for whatever reason, you would rather send me money for comfort things and food at the hospital and for my home life, my paypal is [email protected]
https://join.bethematch.org/hero4hero one more time, please.
be the match is only in america !! if you message me, ill help you find your substitute
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