Do you have any triggers?
Jello, Popsicles, Soup Broth.Â
Gatorade. Gluten Free pasta.
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@kangamoose
Do you have any triggers?
Jello, Popsicles, Soup Broth.Â
Gatorade. Gluten Free pasta.
When people say stuff like âI could never be sick like you, it would be too hardâ, donât get a choice, I can be brave or die, I didnât think I could be sick like this, AND YET HERE WE ARE.
âI donât know how you handle it.â
âWellâŚI donât know, take it one day at a timeâŚâ
âYou have such a great attitude!â
BITCH I SOUND LIKE AN ALCOHOLIC!
First there was the year a half of struggling to not exist as a pile of bones and embarrassment and discomfort and depression on the ground. Then, it was like an out of body experience where you're looking at yourself on the floor, and you realize that you're not in that body, but there this list of Living Things that you still want to get done, and what if this astral projection of yourself went and just... did stuff?
So now you're a projection of yourself but you found another flesh suit, and you're just out living the life of your other self while they live on the floor in the other room.
WebMD please help â view on Instagram https://ift.tt/3qNIe6D
me: *is aware that my health can and probably will get worse over time*
my health: *gets worse*
me:
When us young stomach disorder sufferer's are suffering but we just wanna live a normal life like people our age....we mix the two:
used to be I hated my body cause I thought it looked ugly, now I hate my body cause itâs the functional equivalent of a 1998 Honda Civic with 200,000 miles, questionable brakes, temperamental AC/heating, and terrible gas mileage thatâs liable to break down at any moment in the middle of the fucking road. and the seats arenât even comfy Â
Iâll never not reblog this
Me: *does normal human things*
My Colon:
i can only think of baked goods
When youâre NPO or on a restricted diet because FAILING BODY.
Me: *knowingly eats a trigger food, and in copious amounts to boot*
My gastrointestinal tract: DISTRESS!!!!!
Me: wow, where did that come from, I am shocked and appalled
the best way to explain autoimmune disease to others (via @kuroown when I was in the hospital and this joke she made still makes me laugh)
Educating someone about your illness like
No I'm not "better" !!!
Just because Iâve had my large intestine removed doesnât mean I am now fit and healthy.
HELLO!? I just had my whole colon and rectum ripped from inside my body and had my small intestine pulled through my abdominal wall.. Why on earth would anyone think Iâm perfectly fine after going through all that!?
To be fair, technically you are better. Youâre not perfect, but youâre better than you WERE. Youâre not at your BEST, youâre just BETTER, and BETTER can be anywhere from 5% to 90% improved.
Over time you can get worse or better. I understand your frustration though. Even now after a year and a half with my ileostomy I feel as though people do not take my bag seriously. Sure, we make jokes and laugh but people forget that Iâm in pain a lot and having a full bag is uncomfortable but thereâs no just âholding itâ anymore for people like us.
So your anger is justified. Just remember that other people donât know what youâve been through. Give them the benefit of the doubt, take a deep breath, and try to stay calm.
Is my body just taking forever to heal, or has the disease found its way into more body parts?
And how I donât want to go in to the doctorâs to find out.
An essay from me.