Do you have any triggers?
Jello, Popsicles, Soup Broth.
Gatorade. Gluten Free pasta.
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ellievsbear
PUT YOUR BEARD IN MY MOUTH

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"I'm Dorothy Gale from Kansas"

if i look back, i am lost
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@kangamoose
Do you have any triggers?
Jello, Popsicles, Soup Broth.
Gatorade. Gluten Free pasta.
When people say stuff like “I could never be sick like you, it would be too hard”, don’t get a choice, I can be brave or die, I didn’t think I could be sick like this, AND YET HERE WE ARE.
“I don’t know how you handle it.”
“Well…I don’t know, take it one day at a time…”
“You have such a great attitude!”
BITCH I SOUND LIKE AN ALCOHOLIC!
First there was the year a half of struggling to not exist as a pile of bones and embarrassment and discomfort and depression on the ground. Then, it was like an out of body experience where you're looking at yourself on the floor, and you realize that you're not in that body, but there this list of Living Things that you still want to get done, and what if this astral projection of yourself went and just... did stuff?
So now you're a projection of yourself but you found another flesh suit, and you're just out living the life of your other self while they live on the floor in the other room.
WebMD please help — view on Instagram https://ift.tt/3qNIe6D
me: *is aware that my health can and probably will get worse over time*
my health: *gets worse*
me:
When us young stomach disorder sufferer's are suffering but we just wanna live a normal life like people our age....we mix the two:
used to be I hated my body cause I thought it looked ugly, now I hate my body cause it’s the functional equivalent of a 1998 Honda Civic with 200,000 miles, questionable brakes, temperamental AC/heating, and terrible gas mileage that’s liable to break down at any moment in the middle of the fucking road. and the seats aren’t even comfy
I’ll never not reblog this
Me: *does normal human things*
My Colon:
i can only think of baked goods
When you’re NPO or on a restricted diet because FAILING BODY.
Me: *knowingly eats a trigger food, and in copious amounts to boot*
My gastrointestinal tract: DISTRESS!!!!!
Me: wow, where did that come from, I am shocked and appalled
the best way to explain autoimmune disease to others (via @kuroown when I was in the hospital and this joke she made still makes me laugh)
Educating someone about your illness like
No I'm not "better" !!!
Just because I’ve had my large intestine removed doesn’t mean I am now fit and healthy.
HELLO!? I just had my whole colon and rectum ripped from inside my body and had my small intestine pulled through my abdominal wall.. Why on earth would anyone think I’m perfectly fine after going through all that!?
To be fair, technically you are better. You’re not perfect, but you’re better than you WERE. You’re not at your BEST, you’re just BETTER, and BETTER can be anywhere from 5% to 90% improved.
Over time you can get worse or better. I understand your frustration though. Even now after a year and a half with my ileostomy I feel as though people do not take my bag seriously. Sure, we make jokes and laugh but people forget that I’m in pain a lot and having a full bag is uncomfortable but there’s no just “holding it” anymore for people like us.
So your anger is justified. Just remember that other people don’t know what you’ve been through. Give them the benefit of the doubt, take a deep breath, and try to stay calm.
Is my body just taking forever to heal, or has the disease found its way into more body parts?
And how I don’t want to go in to the doctor’s to find out.
An essay from me.