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ness | 22 | spoonie blog

[mybendyplaces]

tl;dr: i’m opening commissions so i can afford some much needed braces and compression gear for EDS and POTS

hihi everyone! i’m in a bit of a bind and i really need a shoulder and knee brace plus some compression gear thats just outside the realm of affordability for me. getting a job in my minuscule college town has proven to be insanely difficult, so i’ve decided to open commissions! for the time being!!

here’s some examples of my art:

I will NOT draw:

• NSFW art (including gore)

• anthropomorphic animals (nothing against them i just don’t have the skill)

• anything regarding hate speech or the like

to open a commission, you can DM me and let me know what you want and we can talk about it! for flat color and full render i do ask for half upfront :) (also, If you want more than one person, we can talk about how much extra it’ll be!)

please please reblog for traction! the winter is coming and my knees feel brittle lol.

tl;dr I’m opening commissions so i can afford some much needed braces and compression gear for EDS and POTS

[arwyd]

messaging the doctor on MyChart like “hey bestie 🫶🏻 I am in agony 💕✨”

[bpdohwhatajoy]

Being chronically ill in your 20s is stupid you have to see your peers like “started a family🥰” “got married😍” “bought a house😇” “scored a promotion😋” meanwhile you’re fighting for your life to take a shower

[wheelie-sick]

went into the ataxia tag out of curiosity and discovered that it's just me and hundreds of cats /I don't how I feel about this

[pcos-and-endo-awareness]

[disabled-dyke]

How do you personally pronounce Ehlers-Danlos?

ee-lers dan-lows (ee like ‘bee’)

ee-lers dan-loss

aye-lers dan-lows

aye-lers dan-loss

other (replies/tags)

Voting ended onJun 21, 2023

i’ve heard people pronounce it multiple ways, and now im curious which pronunciation is most common.

[mybendyplaces]

how do people get up and go to work all day every day? am I just supposed to do this for the rest of my life?

[overqualifieddog]

[ID: a mock caution sign. The illustration, done in bold black, shows a set of hyper mobile hands stretching the thumb to reach their forearm, and lightning bolts float above the writ. The text on the sign reads “Warning Just because you can bend that way doesn’t mean you should.” /end ID]

Happy EDS awareness month.

[userboxer]

[image description in alt text.]

[mybendyplaces]

anyone else with hEDS feel like a bunch of loose bones in a ripped up rite aide plastic bag

[jadedgenasi]

I've seen this before, but it's been years and it just came across my Twitter in its dying days. The words are from a favorite author of mine, Maggie Stiefvater, and they are the words I most need to hear when it comes to dealing with chronic pain and illness. I didn't need this the first time I saw it, six years ago. I need it now. Maybe you do, too.

[the-goddess-of-annoying]

Image ID: screenshots of text. Text reads:

a very wise woman gave me a piece of advice. She told me to start a journal. In the morning, she said, write down the percentage that I felt I was that day. 20% Maggie. 90% Maggie. Then I should write down what I accomplished that day. I thought at this point she was going to tell me to admire how much I'd gotten done each day despite M a being ill. I didn't want that, I didn't need a pep talk. I needed my brain.

But that wasn't what she said. She told me: write down what you've managed to do on a 20% day, what you've managed to do on a 40% day. Eventually you'll have a guide so when you wake up and you're at 20%, you won't try to do the things you do on a 40% day. You'll know you can just go watch a movie or sit with your goats or whatever and not feel guilty, because you were never going to write words you could keep or be able to exercise or whatever.

And that was the right way.

It meant I no longer labored for 12 hours each day, doing nothing but trying to smash my way through a draft. Instead I slowly began to write bits and bobs in on my good days. A funny thing happened then: once I was not spending every second forcing myself to do things I couldn't, I found I had enough energy to actually start to work on myself. To look for patterns in my good and bad days. To research healthcare providers and new studies on what was wrong with me still. Slowly I found I was able to chain more of the 60% days together, then 80% days. Slowly I began to realize that although it was taking months, I was improving overall.

/end ID

[superdogbiter]

Did you catch covid at any point these past 4 years?

Yes i caught it at least once

No i haven't caught it yet

Voting ended onApr 18, 2023

People who caught it put in the tags what year it was and how bad it was and if you had any side effects

[mybendyplaces]

i noticed its been a while since i’ve posted here! just thought i’d let you all know i’m still around :) (smiley face) just haven’t had to spoons to be on here much and reblog, nonetheless make original content. hope y’all are okay ☺️.

[phireads]

Disabled and Abled People: Have you heard of Spoon Theory?

YES (I have a disability)

NO (I have a disability)

YES (I don’t have a disability)

NO (I don’t have a disability)

Voting ended onApr 2, 2023

Please reblog if you can so I can get a larger sample size

Feel free to put any clarifications in the tags (I’d be very grateful) <3

[slavicafire]

in this new year I want you to be alright. I hope you move out. I hope you have enough money to feel safe. I hope you abandon shame and forgive yourself. I hope you get enough sleep and some good news. I hope you laugh a lot and the heaviness of the world eases a bit. I wish you to be alright.

[hoothootmotherf-ckers]

I’m so angry at the number of people who have commented on my chronic pain posts like “I don’t have chronic pain so I don’t count but I do have chronic migraines-“

that’s chronic pain. that’s specifically the type of chronic pain I’m referring to.

and I’m absolutely not mad at those people, not in the slightest, but I’m furious at everyone and society as a whole that’s convinced them that they don’t count, that chronic migraines aren’t a genuinely debilitating form of chronic pain and disability.

migraines are chronic pain and have significant impacts on your life and you deserve to have that validated and not brushed off as “other people have it worse” or “not a real disability.”

[potsiepumpkin]

Me trying to get all my doctors to coordinate with each other so I can get the care I need.