Hey there, welcome to the chaos. ✨I'm disabled, chronically ill, neurodivergent, and proudly intersex—and if you're any of those things too, I hope you feel seen here. 🫶🏻
Dynamic As Hell 😎
I'm an incomplete paraplegic with dynamic disabilities-meaning some days I can pivot off a foot with assistance, and other days I can't scoot myself up on the couch because my arms are like "bestie no." | use a manual chair with power assist when I can and a power chair when I can't. (Shoutout to my Quantum Edge 3-coming soon to a hallway near me.)
My very unsexy but educational medical resume:
Congenital Myasthenic Syndrome (CMS): A rare neuromuscular disorder where my muscles and nerves straight up ghost each other, causing muscle weakness, loss of sensation, fatigue and joint subluxations (my joints out here freelancing).
Glycogen Storage Disease: My body stores energy like a toxic ex- inefficiently and with long-term consequences.
Dysautonomia (IST): My heart rate is the only thing about me that knows how to hustle.
Also living with: ME/CFS, cluster headaches (ow), fibromyalgia, incontinence (fun!), Hashimoto's, skeletal abnormalities in my spine (lost the genetic lottery) and chronic pain so consistent it's basically a roommate.
Intersex + Gender Is A Journey, Baby! 😮💨
I'm intersex and nonbinary, a proud blend of both. l've had male characteristics since I was 9, and when I got my medical records as an adult, I learned my original birth certificate just said "O." I don't fit in any binary box-so I don't try to. I'm both. I'm neither. I'm a little beard, a little glitter, and a lot of "what gender feels correct today?" I never know if I'm gonna wake up feeling like a glam queen or an Adam Sandler character. Either way, I always slay. 😉
Raw Dogging Mental Health:
I'm healing out loud after a childhood of abuse that started at 9 that contributed to my C-PTSD, ADHD, OCD, autism spectrum disorder, and agoraphobia.
I can't take SSRIs, atypical antidepressants, or antipsychotics due to my conditions and genetics-so l'm rawdogging my mental health journey and somehow thriving anyway?!? 👀
I'm at the gym 3-4x a week (yes, even in a wheelchair-accessibility is radical), exposure therapy, shadow work, and finding the delicate balance between respecting my body's limits and pushing through executive dysfunction. I’m unlearning all the cruel ways of thinking my parents taught me growing up, and learning to be comfortable with being uncomfortable. Some days the healing looks like deep inner work. Some days look like watching reality TV and crocheting until mv hands cramp.
It's messy. It's magical. It's all mine.
Breaking News: There’s No “Bad” Foods After All.
I'm healing my relationship with food. After years of chaos and a major health crash last year, I've lost 80 lbs total-12 of those since getting back on track. Now that my partner is my legal caregiver, l've got the support I need, and my body finally feels like it's starting to work with me, not just against me. I'm not chasing thinness-I'm chasing peace when I make a meal or shop for groceries.
My Little Joys
• Crochet: If it's practical, chunky, or a granny square, l'm in. Currently obsessed with amigurumi but forever starting five new projects before finishing one.
• Reality TV: Yes, I watch 1000lb Sisters, Teen Mom, and Sister Wives. No, I will not apologize. The tea is PIPING. ☕️🐸
• Financial Literacy: My partner and I watch Caleb Hammer while eating dinner. We paid off $10k in debt last year, and now that I have been approved for SSDI I'm able to support myself for the first time in years-and it feels so damn good.
• Art + Gaming: I love painting, drawing, and chill cozy games on the Switch (Paleo Pines, Cozy Garden, anything where I can grow fake plants and pet fake cows).
• Music: Raised by my grandparents = 60s-80s classics. Mom gave me 90s-2000s R&B/pop. Godfather gave me Latin music. Stepdad gave me Bob Marley. Theater kid brain gave me musicals. If I'm conscious, music is playing.
✨ He/They Pronouns ✨
✨ 27 ✨
This space is for disabled joy, queer magic, healing energy, and a lot of chaos. Hope you’re hungry, cause baby I’m serving. 💖
