Need to put my thoughts and feelings into the universe rn and what is the internet if not a backup therapist, amirite?
I’m reading an excellent fic at the moment where the cast all have disabilities and the author is showing the audience a piece of disability culture. It’s great, but it’s got me feeling things about my own life that I don’t love to think about.
I have epilepsy, like one of the characters from the fic, but I can’t help looking at him and myself in comparison and people diagnosed with epilepsy in general and feel confused and kind of icky. Epilepsy is generally considered an invisible disability, to the best of my knowledge, but I feel like a dirty liar for even thinking that maybe I’m a person with a disability. I felt terrible about myself the one time I said I had a disability to my friends, when there was literally a person with hearing aids and an actual disability in the car, like I was trying to say what we go through is even remotely similar.
I haven’t had any of the characteristic experiences of the disabled community, only had great doctors and access to whatever I needed quickly, my seizures are only when I’m sleeping so it’s not something I think about during the day, and my seizures are medicated and controlled.
Don’t get me wrong, I’m thrilled to be approaching four years seizure-free, but even before that my seizures were months apart. Yes, I wear a monitor to bed so my emergency contacts will be notified if I have a seizure, and yes I still live in my hometown and can’t travel by myself because something might happen, but I’m not really disabled by my epilepsy. It doesn’t really affect my daily life, and I somehow feel guilty about that?
I feel like a liar when I say I have epilepsy, because it’s not really epilepsy, is it? I’m fine. I really don’t have it that bad. I feel guilty for inconveniencing my family like this, and I feel like I’m being a fucking drama queen about it all. I feel like if someone says they have epilepsy too, we’re talking about different things.
Maybe it’s some kind of fucked up imposter syndrome, I don’t know. Maybe it’s me looking for diversity points in a culture that values that sort of thing, which is worse.
At the end of the day, I have no clue. I don’t think I have an invisible disability? I’m not epileptic enough to count, but I’m too epileptic to be normal. I hate thinking about this, because I can never land on a conclusion and having a disability, not having a disability, and not knowing are all shit options. End of words.














