Just heard an abled person tell a story about how they started having nausea, went to the doctor, immediately got diagnosed with gallstones, got surgery and were cured. Just. Like. That.
It reminded me why so many abled people can't understand just how insanely difficult it is to get diagnosed and treated for an uncommon illness, and why they struggle to understand the "chronic" part of chronic illness/disability / the "incurable" part of "incurable illness/disability.
You are privileged if you have never had to:
Spend more time on the phone fighting for healthcare than at work.
Educate a doctor about your diagnosis.
Bring medical research to a doctor appointment because you know your doctor is not up-to-date on the latest.
Fight a doctor to test you for a condition (and then turn out to be correct).
Travel to another state or country to obtain care.
Take out a loan or incur debt to obtain care.
Crowdfund your care.
Be literally unable to find a doctor who specializes in your rare disorder.
Help a doctor calm down because they are freaking out about your condition and you know how to deal with it better than they do.
Constantly explain to friends and family that there is no cure for your condition and/or that you still aren't able to do x/y/z.
Politely pretend you haven't tried or looked into the suggestions that uneducated but well-meaning people give you on repeat to "cure" your problem.
Regularly listen to people say that it's your fault you're not better. That you're just lazy, that if you just exercised, you'd be better, or that you're disabled because you aren't righteous enough (if you're part of a religious community).
Get sicker or more disabled because you can't afford your treatment or mobility aids.
Get sicker/more disabled or nearly die on the floor of an ER because multiple doctors fail to take you seriously.
Et cetera. The list. Goes. On. and On. and On. Because it is. Our. Life. It is our. life. Being disabled isn't temporary.
And if you think this sounds too outrageous to be true, it's because your privilege has sheltered you from even noticing disability beyond the sick inspiration porn it provides you. You haven't had to think about what it might be like to be systemically oppressed, but when you get old, you will. Most likely, you'll struggle with your health, and you'll have no idea how to cope with it, because you never paid any attention to us before. I've seen it happen over and over again.













