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Being unreliably speaking is fun, because some days all that comes out of Kiku's mouth is unreliable speech, and others like today all Kiku has is sounds and echolalia and Kiku prefers those days so much. Sometimes Kiku's echolalia is involuntary, but its still better than unreliable speech. When all Kiku has is sounds and echolalia Kiku can actually use AAC. (when unreliable speech is happening a lot its way harder to use aac. Kiku doesn't know why.)
https://cussinanddiscussin.wordpress.com/2019/12/18/emergency-speech-is-dangerous/
I’ve mentioned that I’ve had some recent apparent improvements in my speech, including what I’ve termed emergency speech. I’ve described tha
An article by Mel Baggs , about one type of unreliable speech and how dangerous it can be.
“Fluency is not the same thing as communication. You can be completely fluent, you can even sound as if what you have to say is a plausible response to a situation, and you can be saying nothing of what you intend to say.”
Anouther post about my new discord server!!
This server is ran by disabled people for disabled people. It's for ages 13-19 and is ment to be a place where disabled people can become part of a community. We hope to a safe place for multiple people wether ur mentally ill, have a chronic illness, are neurodivergent or have Anouther form of disability (physical or not) we also hope to be a community for LGBTQIA+ individuals and a judgmental free zone for those who age regress and outhers who can be judged in the outside world for who they are.
Check out the Spoonies and Stars community on Discord – hang out with 27 other members and enjoy free voice and text chat.
Me: just talking to family
them: listening
me: ..realizes I'm not actually using mouth words , this whole time I've just been making sounds/noises not actually making any mouth words and they've been listening to me as if I've been making sense this whole time.
slightly embarrassed tbh
There's more ways to describe how you relate to speech than Can Speak Always, Can Speak Never, or Can Speak Some Of The Time But Not Always, and limiting it to those three is really restrictive and denies the reality of so many of us, and yet, I keep seeing things on tumblr described entirely in terms of All, Never, or Sometimes. I'm not in any of those categories. None of them are descriptive in ways that can help anyone understand me. I can use the words unreliable, intermittent, insufficient, and exhaustive speech, and have those be descriptive. I can use the descriptions of the trauma that I went through and that I can't ever rely on my speech yet my bodymind has the response to speak whether or not it has any relationship to things I want to say because Trauma. I can describe the fact that yes, sometimes speech gets what I need to across. And at the same time, no, I am not Able To Effectively Speak, in those moments. I can talk about the ways that speech is complicated in so many different ways. But I'm not any of Always, Sometimes, or Never. And its so incredibly confusing to see this treated as how things work.
AAC Struggles
I just wrote my AAC device company to see what support they can give me, but I thought I'd take my struggles to the community for advice, too. I struggle to be concise and to organize my thoughts, to bear with me.
I have Level 2 Autism (I find diagnostic levels helpful, it's okay if they're not for you, and I'll never use them for anyone else unless asked to by the person with the diagnosis. I also support self-diagnosis/-identification), and expressive-receptive communication disorder, and self-diagnosed selective mutism. I consider myself an unreliable communicator. I am a part-time AAC user, but I want to use it to support myself more than I currently do; I often just don't communicate in situations where I have needs or thoughts. I was able to get AAC after not having support due to childhood circumstances that don't reflect on my support needs about 5 years ago, but I'm really struggling to make it work for me. I struggle to build sentences from individual words. I also struggle to respond in real-time, and people aren't very patient. I have a big struggle with phone calls with a captioning service; I get constantly hung up on because of the computer voice and my response speed. I've been laboriously typing out/scripting what I want to say in appointments in my AAC as whole paragraphs and just playing those paragraphs in appointments so far, or just continuing to have support staff speak for me because I'm too slow on AAC to do things like the check-in process and people yell at me for not talking. And typing everything out as paragraphs ahead-of-time only works for appointments and severely limits how much I can react to what happens in the moment or even make simple, real-time requests. I used to write out what I wanted to say at appointments and just hand it to the doctor before I had AAC. Surely, there should be a way to make AAC help me do things like chat with my friends or ask for things from my aide. I can talk some. But it's very difficult, not possible most of the time, and leads to some pretty volatile meltdowns from overload. I also have some trouble understanding speech, which is a while different question.
Open to any advice.
Oh, I also keep breaking my wheelchair AAC mounts because I'm not a very good driver. I'll tag wheelchair users, too, in case there's a better mount option than what's pictured.
Also, my AAC is Lingraphica.
Make the effort to say "nonspeaking" instead of "nonverbal." It's not nitpicking or semantics or a tiny difference. Nonspeaking autistics have words and use them, just not with their mouths. Everyone uses nonverbal speech, not everyone uses their mouths.
EDIT: Absolutely of course defer to how the person you're speaking to prefers to be described.
“I prefer nonspeaking as I understand all language. Non-verbal suggests I don’t understand language and doesn’t represent how I love languag
Does anyone else ever say the opposite of what they really want to say because of how unreliable their speech is? Like saying yes when you mean to say no?
I am afraid that one of these days, I am going to get myself in to trouble because I end up saying the wrong thing that I don't mean to say. It is very frustrating to deal with, and it makes talking to people so much more difficult.
