Dinosaurus Rex

24, ADHD (and the rest) 🩷💜💙 🇬🇧

[thedinosaurusrex]

It be like that

[thedinosaurusrex]

24 f with multiple things wrong 😂 moderate to severe ME, PMDD, migraines, gastritis, ibs, mental health issues etc the list is endless

I guess I’m reaching out to vent I had a gastritis attack, migraine & ME issues all at once, I was vomiting, in pain, can’t take meds (need review because I can’t take most for different reasons)

Partner has been really good but I’m definitely deteriorating & it’s scaring me

Doctors aren’t any help & my only reliable family member is my dad who’s 68 nearly & has learning difficulties.

He can’t afford to retire, I’m unable to work & have been for years now because I was diagnosed at 18 & have pretty much always been at least moderate, the comorbids have just kept coming.

People in my life are abelist as hell so my guilt makes me feel awful.

I guess I’m reaching out to say I’m scared, it feels like a real possibility I’ll never be able to look after myself or live normally & my poor dad usually relies on me for certain things (like phone calls & paperwork or arranging non direct debit bills such as online food orders)

And I’m worried that if I worsen much more I won’t be able to help him either.

I also don’t really have friends.

How is everyone else coping ?

[bee-fox]

I think that it's really important for people to realize that being disabled is traumatic. genuinely. your body and brain feel like they are breaking down and wrong. you are in constant heavy stress from stuff like chronic pain. most disabled people i know have a somewhat regular emotional break down from the trauma of it all. and we are expected to just smile through it by society, to not be in the way, to not be an issue.

[dionysusfanboy]

Fear is also a pretty big part of it for me. Fear that it'll get worse. Or knowledge that it'll probably get worse, based on other experiences I've seen. Fear I'll have to give up on things that bring me joy or that allow me to survive. Fear is traumatic too.

[violet-phoenix-nebula]

When someone has a chronic illness or is disabled and can't work, they say a few common things.

It must be nice to sit around all day/sleep all day.

I wish I could sit around all day and not work.

I wish I could sleep all the time.

They don't want to sleep as much as we have to. They'd feel sick and sluggish.

They don't want to sit around the house all day not doing anything. They'd be bored out of their fucking skull.

It's so unbelievably fucking frustrating, but there's a fundamental lack of understanding.

They liken our lives to a vacation, imagining that it's fun and relaxing and we can do whatever fun things we want to all the time.

In reality, it should be likened to an extended hospital stay. You can't do anything and you feel like shit.

[autistic-bipolar-psychotic]

Shout out to mentally ill people who dropped out of school

- shout out to the kids who were “so bright” and ‘heading somewhere” and had to drop out because school was too much to handle along with mental illness

- shout out to the kids who struggled to get where they got before they dropped out

- shout out to the kids who tried and tried and tried and still couldn’t finish

you aren’t unintelligent because you dropped out of school, you aren’t a delinquent or a bad person because you dropped out of school, just because you did what you had to doesn’t make you a bad person

[dreamingof-food]

having a chronic illness is like having a second full time job. except, instead of getting paid you do the paying.

[homunculus-argument]

Trying to take care of yourself when you're sick is so annoying. Like you know you should probably eat something and you're trying to question yourself on what you'd want to eat, and the only answer is your inner voice of dying Jane Austen going "I desire nothing but death". well ok you dramatic sickly bitch do you want that with garlic or hot sauce.

[chronicillnesshumor-deactivated]

I like pretending I feel okay while having 300 extremely disturbing symptoms

[chronicillnesshumor-deactivated]

[balaclava-trismegistus]

Doctors get all "Oh, where'd you hear about that? Dr. Google?" then you ask them about something you read in a peer reviewed journal they turn their monitor away from you to use Doctor Google.

[crippled-peeper]

I don’t want a partner who can fix me or cure my disabilities I want a partner who can see me go through some horrific physical and medical bullshit and still have the ability to say to me “that sucks and isn’t fair. do you want to get food and watch a stupid show?” every time instead of running away or ghosting me because it’s too scary

[chronicillnesshumor-deactivated]

[thedinosaurusrex]

Unexpected diary entry

Hi tumblr

I love being neurodivergent

I’m currently ✨messing everything up✨ so badly that even other ND’s are overwhelmed by me & it’s effecting my life in too many ways

Social que failure ✅

Scaring people with info dumps ✅

Reading everything wrong ✅

Burnt out, lost & feeling a bit broken ? ✅

Andddddd to top it off my PMDD wants to show up

Fml

[nondivisable]

"everyone should care about accessibility because most people will become disabled at some point in their life" is a logical argument and I understand its popularity

however, everyone should care about accessibility because disabled people are fellow human beings living in the same society as you who deserve the same rights as you

thank you good night

[chronicillnesshumor-deactivated]

Doctors are like: ughhhhh. You're confusing. Come back if you die

[identitty-dickruption]

when abled people talk about employability + disability I don't think they entirely understand the domino effect of unemployment/underemployment that can happen in a disabled person's life

the kinds of jobs that are considered 'unskilled' or 'entry level' are inaccessible for various reasons (e.g. involve having to stand up for long periods of time)

the time in your life when many people are expected to start working these entry level jobs is while you're still in school. the sheer exhaustion of school means that even when those jobs aren't completely inaccessible, many disabled people simply do not have the energy to do them

without any work experience, it's very hard to get work. the kinds of jobs that tend to have more accessible workplaces are either not entry-level or require a certain level of education to enter them. also without having gone through a hiring process before, it's very hard to even know what to expect from a job, which only creates additional barriers

even if you do have work experience, being disabled is not really taken as a valid reason to have gaps in your resume, which means you immediately look like a suspicious/risky hire to a HR department

disabled people, once we do have jobs, are more likely to be underemployed than abled people, meaning that we have fewer opportunities to demonstrate our skills in the workplace, and are less likely to be able to accumulate a back catalogue of good references to take with us in the 'getting a new job' mission. this itself keeps us underemployed

NOT to mention the fact that the exact same process can happen with respect to education (the being in special ed -> being able to go to university pipeline is basically non-existent. and if it is there, it is very hard to navigate). I'm not sure yet another 'employable skills program' can get us out of this one, chief

[byjove]

as a severely mentally ill 14 year old, I remember thinking “the medical system would treat me better if I was physically ill and not mentally ill” and then I coincidentally developed multiple chronic illnesses and found out that actually they dgaf even when you’re essentially bedridden