Society acts as if the chronically ill are obligated to tell their medical information to anyone who asks. Even to your own mother. You are not. You are not obligated to tell anyone, everyone, even your own mother. You are not.

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@thelavaisreal
Society acts as if the chronically ill are obligated to tell their medical information to anyone who asks. Even to your own mother. You are not. You are not obligated to tell anyone, everyone, even your own mother. You are not.
Image is a masked thief in black and gray, grinning and holding a giant spoon. Beware the Spoon Robber!
Buy it here: [link]
$4.29
Iâve seen other diagrams showing spoon allocation, and decided to make one of my own spoon drawer as a visual aid for communicating with my doctors and such. It was actually a really helpful exercise. I donât really have âgoodâ days any more, so this is a representation of a regular ânot terribleâ day.
The spacing isnât quite perfect, but Iâm gonna let it slide because this was extremely spoon intensive.
Update: negative spoons added to work.
Reblogging because Iâve gotten a LOT of questions about the spoon theory lately, and a follower brought this lovely visual representation to my attention!
I would like to try to work on something like this to help myself communicate my limitations with other peeps.
This is SO helpful, especially the âmissingâ and negative spoons in the âhouseworkâ, âworkingâ :( and, for my ADHD brain, 'executive functionâ allocation areas. Itâs not simply a case of not trying hard enough or not wanting to change what youâre doing (or not doing), the resources just are NOT THERE so you Canât Evenâą. I wish people understood that, but they donât, apparently.
Iâm reblogging this for the last comment, and because on tomorrowâs episode, we talk about The Spoon Theory! Cathy talks about a run-in she had with someone who appropriated the concept to describe ânormalâ tiredness, and just how offensive that is!
In the meantime, check out our other episodes in the Dysautonomia Series that are up now! http://www.insicknesspod.com/blog/2015/10/27/the-in-sickness-in-health-podcast-is-now-live
[Image description: White text against a grey background reads, âchallenged, handicapped, handi-capable, differently abled, divers-abled, special needsâ. Beside each euphemism for disability is a red X, indicating no. Below the list of euphemisms is the word âdisabledâ in larger type, and with a green checkmark beside it, indicating yes.]
Seriously. Cut it out with the euphemisms. #JustSayDisabled
(this design is also available in black&white)
(edited to add: yes friends this is a shirt that you can actually buy click here~)
Your illness will begin to feel normal.
Maybe not today, maybe not in five years, but one day youâll forget what itâs like to be âhealthyâ and your healthy will be enough. And that is both a good thing, and a terrible thing.
As a person with a chronic illness, I can 100% confirm this
For all the quirks that make it so difficult to describe, there is one unifying truth among people with SED. All of them ⊠Every. Last. One⊠would, if they were able, willingly choose to eat normally.
I found this post titled Picky Eating vs. Selective Eating Disorder and included in this gem of a post was this picture which I really kinda likeâŠ
I think I may have to print this off on little cards and hand them out to everyone who says im just being picky.
Stuff Abled People Like: Using extraordinary achievements by individual disabled people to shame other disabled people who need accommodations.
Yes. Please stop doing this.
When a friend asks how you are
when a spoonie friend asks
90% of what my doctors do: ÂŻ\_(ă)_/ÂŻ.
So Inspiring!!
Using A Wheelchair Didnât Stop Local Disabled Person From Having Mobility.
Blind Person Used Public Transit All On Their OwnÂ
Person With A Feeding Tube Went Out Somewhere In Public
Person Wearing Neck Brace Laughed at a Joke
This Story Will Warm Your Heart: Person With a Cane Has Friends, Casual Acquaintances
Amazing - Deaf person still able to hold conversations
Local Mentally Ill Man Not Actually a Danger to Society, Doctors Say
Local Teen an Inspiration: Still Attends School Despite Medical Condition
Disabled Mom Manages To Make It To Some School Events!
Chronic pain sufferer is able to smile!!
How most people with invisible illnesses are treated by health care âprofessionalsâ
The Golden Girls didnât fuck around
pls watch
honestly i really appreciated this scene when I first saw it bc it took me like two years to get a diagnosis for whatâs wrong with me
Dorothy: Â Dr. Budd?
Dr. Budd: Â Yes?
Dorothy: Â You probably donât remember me, but you told me I wasnât sick. Â Do you remember? Â You told me I was just getting old.
Dr. Budd: Â Iâm sorry, I really donâtâ
Dorothy: Â Remember. Â Maybe youâre getting old. Â Thatâs a little joke. Â Well, I tell you, Dr. Budd, I really am sick. Â I have chronic fatigue syndrome. Â That is a real illness. Â You can check with the Center for Disease Control.
Dr. Budd: Â Huh. Â Well, Iâm sorry about that.
Dorothy: Â Well, Iâm glad! Â At least I know I have something.
Dr. Budd: Â Iâm sure. Â Well, nice seeing you.
Dorothy: Â Not so fast. Â There are some things I have to say. Â There are a lot of things that I have to say. Â Words canât express what I have to say. Â [tearing up] Â What I went through, what you put me throughâI canât do this in a restaurant.
Dr. Budd: Â Good!
Dorothy: Â But I will!
Dr. Buddâs date: Â Louis, who is this person?
Dr. Budd: Â Look, Missâ
Dorothy:  Sit.  I sat for you long enough.  Dr. Budd, I came to you sickâsick and scaredâand you dismissed me.  You didnât have the answer, and instead of saying âIâm sorry, I donât know whatâs wrong with you,â you made me feel crazy, like I had made it all up.  You dismissed me!  You made me feel like a child, a fool, a neurotic who was wasting your precious time.  Is that your caring profession?  Is that healing?  No one deserves that kind of treatment, Dr. Budd, no one.  I suspect had I been a man, I might have been taken a bit more seriously, and not told to go to a hairdresser.
Dr. Budd: Â Look, I am not going to sit here anymoreâ
Dr. Buddâs date: Â Shut up, Louis.
Dorothy: Â I donât know where you doctors lose your humanity, but you lose it. Â You know, if all of you, at the beginning of your careers, could get very sick and very scared for a while, youâd probably learn more from that than anything else. Â Youâd better start listening to your patients. Â They need to be heard. Â They need caring. Â They need compassion. Â They need attending to. Â You know, someday, Dr. Budd, youâre gonna be on the other side of the table, and as angry as I am, and as angry as I always will be, I still wish you a better doctor than you were to me.
Honestly this is my favorite thing in the world. I almost cried. đ„
Fucking incredible.
Fuckinâ A, go hard.
i support the apparently radical idea that ableism exists because of abled people devaluing disabled peopleâs lives and experiences, and not because of people self-identifying as disabled
being disabled is not an inherently bad thing. if someone tells you itâs inherently bad, or tells you itâs inherently negative self-talk to call yourself disabled, theyâre wrong.
iâm disabled. iâm too disabled to be considered productive in capitalism. my life and experiences are valuable regardless. my value as a person isnât determined by how useful i am to capitalism.
With such a wide range of symptoms, fibromyalgia can be hard to diagnose, or even define.
Yep, good stuff.
I hate it when I feel all wonky and I canât figure out why. I slept okay last night, Iâve eaten today, taken my medicine, drank juice, why do I feel gross?
Then itâs like, oh yeah, chronic illness, thatâs the name of the game.
Another one of those days when