i’ve seen some people (both on here and ig) minimizing ME/CFS like it’s no big deal (like how fibromyalgia was and still is treated) and if you think that, sincerely fuck off. and to do that during ME/CFS awareness month? cruel. after a man with very severe ME/CFS DIED? horrid.
ME/CFS is an extremely debilitating systemic disease with lethal potential. pwME have an extremely low quality of life and no approved treatments. the majority of people never recover.
take it seriously. this isn’t the “i’m tired” disease.
there's a reason it's no longer called "benign myalgic encephalomyelitis" and that reason is people died from it (and continue to because of a criminal lack of adequate care available)
Also please note that so-called 'mild' severity is defined as a minimum 50% reduction in activities of daily living and is significantly disabling, it's just that severe me/cfs is such genuine horror movie shit that having only a couple hours worth of capacity every day is small potatoes in comparison
I have NO PATIENCE for anyone minimising it


















