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@imtootiredtocomeupwiththis
To anybody who has recently realised they are adhd/autistic/neurodivergent:
Please don’t set your goals based on what other people expect you to achieve. Find out what would feel like an achievement to you and work towards that at your own pace.
If your achievement doesn’t sound like a big deal to somebody else that is absolutely okay!
Do what you do, and be proud! Your strengths may be different from other people’s strengths and that is completely okay!
So I was taught a lesson in how to get rid of a migraine in 30 seconds and omfg listen my migraines don’t go away ever but I was shown what part of my body to touch and like???????????????
It’s witchcraft????????? Like I would be burned at the stake if I lived in ye olde days knowing that information?????
What the fuck??????
Spill it! Lol….Hooooowwwww?? Had migraines since age 9….😓😓😓
Its called the T4 push, but I literally can’t find the info online????? I guess I’m not searching good enough? These medical fuckers are holdin out on us lol.
It’s best to have someone do this for you while you stand up and relax your muscles as best you can, but if you’re alone, a tennis ball and a flat surface will probably work. Alternatively you can lie on the edge of a bed at the pressure point. (But no really do try to find someone to do it for you)
Find the area in your spine between either the first, second, third, or fourth vertebrae. It should be sore and uncomfortable to press down on, so look for the one that’s most painful, and press down with as much pressure as you can on that area for 30 seconds.
Realize that 80% of your pain has magically disappeared and keep the info secret if you live in a small puritan town, lest you be tried for witchcraft.
If you don’t have to worry about being burned or hanged, then share the info with your migraine suffering friends.
As someone who wrote a 10k word paper on pressure points for a high belt ranking test in her martial arts class, I can tell you that you just found a pressure point used in acupressure and acupuncture to relieve pain, particularly that in the head. :)
Hand to god we discovered this by accident when my husband was rubbing my neck and I nearly collapsed it felt so good
This post was sent by literal angels??? I’ve had a persistent low-level headache for nearly 24hrs and now it’s gone??? In 30 seconds? What gods did you sacrifice to for this information!?!?
As a medical massage therapist, I thought I would give my two cents.
This is good for tension migranes and normal migraines, but actually pretty useless for sinus migraines. It’ll help for a hot second, but quickly come back. (These are usually the migraines behind your eyes, in your ears, and behind your forehead. Sometimes it can feel like jaw pain or TMJ) for sinus migraines, behind the ear in a divot. Press down firmly and pull towards your collarbone. That’ll drain your sinuses. Also, pressing around the eye socket on the cheekbones help. There is also a little triangle up away from the eye in the eyebrow bone. Press and hold pretty hard and that’ll relieve that behind the forehead pain. Also, ear pulling is great to help move sinuses around.
Don’t forget the temples too! Press firmly and hold. Open and close your jaw while holding your temples. It’ll feel weird, but it’ll help with jaw pain. It’ll work a similar way if you hold the jaw joint under your cheekbone.
And never underestimate the power of a foot massage!! Give minutes can be all the difference!! Our feet are our base. If they hurt even a little, somewhere else in your body will hurt. Treat your feet and sinuses kindly!
As a lifelong sufferer from frequent migraines I will reblog this everytime I see it, for myself and my fellow sufferers!!
let me fucking tell you a thing about self-diagnosis. I have kidney stones, that if not medically removed, would kill me, and this has happened several times. I’ve had them since I was 16, I’d go to doctors, they’d say, oh it’s your period, I’d go to another doctor, they’d say, oh it’s a UTI it was not until I googled and searched up my particular symptoms, that I figured, hey, it might be kidney stones. So I told a doctor, I’m like, hey I might have kidney stones, and so they’re like, lets do an ultrasound, nothing showed up. And so the doctor was like, I guess not. And I’m like fuck, I wonder what it could be then, until I googled it, and found out that sometimes kidney stones don’t show up in ultrasounds. If I didn’t google that particular information I would have died, because they wouldn’t have taken a cat scan and found MY GIANT FUCKING STONES blowing my kidney the fuck up. Self-diagnosis SAVES LIVES, it saved my life, and it saves millions of others.
If people know there is something wrong with their bodies, and doctors continuously blow them off, if those people don’t look into it, or have someone help them look into it, they can very easily end up dead.
Doctors are NOTORIOUS for blowing people off.
Oh my god my pastor just told the best story
So a family at a small church had a kid on the autism spectrum (like me!). This kid, like many on the spectrum, was very routined and would get very upset by a loss of said routine. The church this family went to was very accommodating of this family; they set aside a whole seating area so that the kid could sit in the service and have space to not feel overwhelmed by the crowd of people in the building (meanwhile I’m listening to this while sitting in the empty of pews in the back for that exact same reason lol) and were very respectful of this kid’s spacial and sensory sensitivities. Which is super nice, but get this:
One day, the family was running late to church. They knew that missing the first fifteen minutes of the service would freak out their routine-oriented son, but they decided to chance it because the routine would potentially be thrown off even more if they didn’t go to church at all. So they go in through the back, trying to be really quiet, and the parents could see the panic blooming in their child’s expression almost the second they walked in. At that moment, the pastor saw the family walk in… stopped the service… and started over.
I kid you not, I started crying. I’m standing in the atrium after the service over an hour after he told the story and I’m crying again just thinking about it. That someone would go so far out of their way to ensure that a place designed to be a safe and comfortable place for everyone actually was a safe and comfortable place for EVERYONE… as someone on the spectrum I’ve never experienced this level of unbegrudging understanding and accommodation. Even the most respectful and aware people in my life still make me feel like I’m being an inconvenience.
The pastor later went on to say that this is the model of care and empathy all Christians who want to emulate Jesus should strive for, and for the first time in my life I fully understood just how drastically corrupted mainstream Christianity is. Imagine a world where every person who said they were a Christian acted like this. “Peace on earth and goodwill to man…”
Accessibility success of the day #12
Sometimes accessibility means making an extra effort to leave no one behind.
Just sold my first piece of writing! It’s a short humor article. :)
Do not “wait to get worse”.
I don’t care if you’ve “been worse”
Your body is tired of this.
You deserve help in this moment.
I needed this today, thanks.
Anyone with hEDS have advice for dealing with wrist issues? My dominant wrist has been hurting a lot for the past couple weeks after feeling some instability. Now I can’t put any weight on it or hold anything heavier than an 8oz can without even more pain. I have to wear a wrist brace all the time in order to moderate the discomfort. Mostly, the pain is on the back of my wrist but also radiates to the CMC joint and down the inside of my arm below it. At this point, working is becoming really difficult and I can’t even do dishes. Any advice would be really helpful.
Followers, any suggestions?
Spoons are the most elusive cryptid
Hey i have this cool new idea and its called “people with chronic illness shouldnt have to weed out all sugars glutens alcohol and non organic oxygen and lose 50 lbs and excercise 25 hours a day before theyre deemed deserving of help or have their pain taken seriously or are allowed to even just live their fucking lives and talk about their illness without snide comments from ableds who don’t exercise and would never give up their daily 15000 calorie frappe with enough caffine in it to kill a horse’
Let me be clear, this a call out for all abled people and that includes ableist af physicians who would rather make you jump through hoops for months than listen to what you have to say about your own goddamned pain
I lost 60lbs due to illness within the space of like, 5 months. Let me tell you my dudes, literally everyone who knows me irl said I look “great” “healthier” more “vibrant” now until I tell them it’s because I barely drink thin liquids down and haven’t had a meal since June. Wanna know what I get sometimes? “I’ll have to try that” “I’m jealous” “at least you’re loosing weight” Or my personal favorite: “I would DIE if I had to do that!”
Me too my dude, me too.
so this might seem dumb but its helped a lot instead of saying “i wanna die” in normal conversation or like in my head in response to minor inconveniences like even as a joke, saying “i wanna go to bed” has like. improved my life tenfold no joke
this is ok to rb btw
Being sick is pretty boring. I would love a hobby that doesn’t require using my hands? Does anyone have any suggestions? Bonus points if it can be done entirely sitting or lying down
I like creating stories and fan fiction in my head. One person I heard of liked to imagine traveling the world, so she would go on imaginary deep-sea diving adventures and such, which she would picture in vivid detail in her mind.
Another would be listening to audiobooks, or podcasts, or tedtalks, perhaps.
I don’t have limited use of my hands myself, so I don’t have a lot of ideas, but perhaps some of my followers might?
Art Critic: the skull in the corner is artfully placed on the periphery of vision to symbolise the omnipresence of death, important thematically to the artist’s conception of life and mortality.
Actual Artist: aw shit, I got all this negative space, guess I’ll stick a skull there that looks pretty rad.
Hey, unpopular opinion, apparently. But people don’t just “have pain for no reason” doctors say this all the time (especially to women and chronically ill people) and the truth is, Thats literally not possible. Even if your pains are psychosomatic (a word I hesitate to even use because of the way its used so often) there is a reason you are having those pains whether its mental illness, abuse, etc. If your doctor consistently tells you that “well some people just have pain for no reason” get a new doctor. That’s a doctor who is not going to give a shit what your actual symptoms or experiences are.
I just wanna add to clarify the psychosomatic thing.
That word DOES NOT MEAN you’re making it up. It doesn’t mean you’re imagining the symptom. What it means is that the symptom ISN’T DIRECTLY CAUSED BY ANY OF THE THINGS THAT WOULD NORMALLY CAUSE IT.
I fought to get a PCOS diagnosis for 2 and a half years. For the ENTIRE time I was fighting, I was dealing with 3 cysts that were not going away by themselves and eventually required surgery to remove. At one point close to the end of the battle, I suddenly went blind. I was visiting my parents and was standing on the veranda looking out over the tree we had planted in memory of my dog and suddenly I got one of the shooting pains that I was quite frankly used to at that point and my vision started to go dark. It was like the sun was setting while being completely hidden behind storm clouds but it was 2pm in the middle of Summer on a clear day. Within about 30 seconds I couldn’t see ANYTHING. I was 27 years old and I was screaming for my mother.
My mum raced me to her doctor (he was a 15 minute drive away as opposed to 45 minutes to the nearest hospital) and he quickly worked out that there was nothing wrong with my eyes and what had happened was totally unrelated to them. Then he said it was psychosomatic and I freaked out, yelling that I was NOT making this up and I definitely wasn’t imagining it. Very quickly he calmed me down and said he believed me and I had misunderstood. He explained that whatever was going on with my abdominal pains (he suggested PCOS which I hadn’t even heard of at that point) had been ignored for so long that my body was starting to do things other than the normal pain response to try to draw my attention to the problem. My sight going was my body basically jumping around in front of me going “HEY ARE YOU EVEN LISTENING TO ME HELLLOOOOOOO??????”
He gave me some prescription strength painkillers and my sight started to come back as soon as they started to kick in. About 45 minutes after it started I could see well enough to walk around without help and within a day and a half I was back to normal. On top of that I finally had a scan booked to figure out what the hell was causing all the pain.
Psychosomatic symptoms are NOT imagined or fabricated or happening for “no reason”. Experiencing them DOES NOT make you a liar. It makes you someone who has been battling with something serious for so long that your own body has started to get impatient with you.
I completely agree. Thank you for sharing this.
Disability Wishlist.
It’s really fucking hard to admit that I need help. But I’m having mobility issues & severe pain. For my dignity, I need to be able to bath myself for as long as possible. Right now, I’m struggling to do that. I made a #disability wish list and the most important on there is a shower chair, wall grip, and hand held shower head. These are things that will help me be able to bath myself. I know these things are expensive. I don’t expect anyone to outright purchase anything. But even a $5 Amazon gift card or just $5 to my PayPal or $2 or $1 is helpful.
I did put other stuff on there, because it’s fun to dream. That maybe like a millionaire is like going through wish lists and will make it rain. 😂
But most important is the chair, the grip and the handheld shower head. Any and all donations/Amazon gift cards will go towards that. Thank you to anyone who read this, bless you and thank you to anyone who wishes they could or does help. My pride is a little beaten, but I’m thankful this is even a possible option.
🖤
Disability Wish List:
https://www.amazon.com/gp/registry/wishlist/3M408EBGBA9BY
PayPal:
Please reblog if you don’t mind. 🙏🙏🙏
Stop taking people with dementia to the cemetery
“Oh yeah, every time that dad forgets mom is dead, we head to the cemetery so he can see her gravestone.”
WHAT. I can’t tell you how many times I’ve heard some version of this awful story. Stop taking people with dementia to the cemetery. Seriously. I cringe every single time someone tells me about their “plan” to remind a loved one that their loved one is dead.
I also hear this a lot: “I keep reminding mom that her sister is dead, and sometimes she recalls it once I’ve said it.” That’s still not a good thing. Why are we trying to force people to remember that their loved ones have passed away?
If your loved one with dementia has lost track of their timeline, and forgotten that a loved one is dead, don’t remind them. What’s the point of reintroducing that kind of pain? Here’s the thing: they will forget again, and they will ask again. You’re never, ever, ever, going to “convince” them of something permanently.
Instead, do this:
“Dad, where do you think mom is?”
When he tells you the answer, repeat that answer to him and assert that it sounds correct. For example, if he says, “I think mom is at work,” say, “Yes, that sounds right, I think she must be at work.” If he says, “I think she passed away,” say, “Yes, she passed away.”
People like the answer that they gave you. Also, it takes you off the hook to “come up with something” that satisfies them. Then, twenty minutes later, when they ask where mom is, repeat what they originally told you.
I support this sentiment. Repeatedly reminding someone with faulty memory that a loved one has died isn’t a kindness, it’s a cruelty. They have to relieve the loss every time, even if they don’t remember the grief 15 minutes later.
In other words, don’t try to impose your timeline on them in order to make yourself feel better. Correcting an afflicted dementia patient will not cure them. They won’t magically return to your ‘real world’. No matter how much you might want them to.
It’s a kindness of old age, forgetting. Life can be very painful. Don’t be the one ripping off the bandage every single time.
I used to work as a companion in a nursing home where one of the patients was CONVINCED I was her sister, who’d died 40 years earlier. And every time one of the nurses said “that’s not Janet, Janet is dead, Alice, remember?” Alice would start sobbing.
So finally one day Alice did the whole “JANET IS HERE” and this nurse rather nastily went “Janet is dead” and before it could go any further I said “excuse me??? How dare you say something so horrible to my sister?”
The nurse was pissed, because I was “feeding Alice’s delusions.” Alice didn’t have delusions. Alice had Alzheimer’s.
But I made sure it went into Alice’s chart that she responded positively to being allowed to believe I was Janet. And from that point forward, only my specific patient referred to me as “Nina” in front of Alice—everyone else called me Janet, and when Alice said my name wasn’t Nina I just said “oh, it’s a nickname, that’s all.” It kept her calm and happy and not sobbing every time she saw me.
It costs zero dollars (and maybe a little bit of fast thinking) to not be an asshole to someone with Alzheimer’s or dementia. Be kind.
I wish I had heard this stuff when Grandma was still here.
I read once that you have to treat dementia patients more like it’s improv, like you have to take what they say and say to yourself “ok, and” and give them more of a story to occupy them and not just shut it down with something super harsh.
A nurse I used to work with always told us: “If a man with dementia is trying to get out of bed to go to work, don’t tell him he’s 90 and in a nursing home. Tell him it’s Sunday and he can stay in bed. If a woman with dementia is trying to stand because she wants to get her husband’s dinner out of the oven, don’t tell her he’s been dead for 20 years. Tell her you’ll do it for her and she can sit back down.”
Always remembered that, always did it. Nothing worse than hearing someone with memory loss ask the same question over and over again only to be met with: “We already told you!”
Just tell them again.
I’ve worked with elderly dementia patients, and I agree with all the above. Treat them as you’d like to be treated in the same situation.
Same. I’ve worked with patients like these and even my grandma was convinced for a day that I was my aunt. Just roll with it.
a professor that accommodates ptsd? what is this??
Today I was talking to my professor about my ptsd and how it may affect class performance, because it’s a very participation-heavy class. The system that my professor came up with is kind of beautiful, so I want to share it with you guys.
She gave me some neon pink post-its, the kind that can be seen for miles because of how bright they are. If I’m having a flashback, dissociating, panic attack, etc., I can just put one of the post-its on my notebook, or somewhere in front of me on the desk. She’ll take that as a cue to not call on me and not expect me to participate. When I’m ready to engage in class again, I’ll just move the post-it out of sight.
I definitely appreciate having this accommodation, and I plan to use it with my future students someday. It’s simple, works when I’m non-verbal, and it doesn’t look like anything weird or attention-grabbing to classmates.
I’m going to use this with any of my students that need this kind of accommodation.
This is genius. Sticking it in my mental filing cabinet in case I ever have a student who needs it.
Chronic Illness
Ok so I want to get back into this thing. Blogging, I suppose. I’m too exhausted to type so I might do a video type thing. Not sure. Anywho….
I need new blogs to follow. Reblog or like if you have a chronic illness. Especially Fibromyalgia, Chronic Fatigue, Or IBS.
