all noise that i do not create or cannot control is the Enemy
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we're not kids anymore.
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@sickandinlove7
all noise that i do not create or cannot control is the Enemy
the disabled experience of being too tired to watch a movie, or an episode of a tv show or even just an interesting youtube video despite being in bed, medicated, fed and hydrated is a humbling experience that i want able bodied people to experience for ONE DAY, just one, so they understand how like 60% of my life feels
Iām ārestingā but Iām actually just buffering until I have to do something. Itās never relaxing. Iām always stressed. I spend hours trying to stay awake just because I woke up and used my phone for a bit and it was too much. People look at me and probably think Iām lazy and not trying and all I do is rest but this isnāt rest. Iām never rested.
Hi! I love all your work, especially as someone who is also disabled and neurodivergent. I hope things have been going well with you! As for a request I was wondering if you could do a reactions kind of thing for BTS to you having a flare up/bad symptom day and youāre really frustrated and upset because you had a date planned or something but you donāt think you could handle it, but you still try to hide it from them. For me I always struggled with severe nausea that is cause by POTS and made worse by anxiety, and I have spent hours crying on the bathroom floor out of frustration haha. Sorry if this is too wordy or detailed, I tend to type whatever I think and just go with it lol. I really enjoy your writing and always come back to it for comfort. Itās such a relief having someone who writes neurodivergent and disabled characters and represents it well. š
as someone with POTS as well, im glad you've found my work and feel like its comforting. that's one of my goals for writing is to help people see themselves in media, as someone who is disabled and/or neurdivergent.
I hope you enjoy this reaction that it helps you feel a little bit more comfort :)
namjoon, yoongi, and jungkook
would notice something wrong almost immediately
hates that you try to hide how bad you feel because it makes them wonder if your feel safe or comfortable with them
would try not to make anything a big deal and just get right back into bed with you.
date night in the bedroom now, surrounded by salty snacks and drinks (with electrolytes) and playing your favorite movies.
would just hold you close and listen to your frustrations
"oh, you need your drink opened, let me"
"oh, you need your snack opened, let me"
"oh, you need to go to the bathroom, let me carry you there."
would check your heart rate and keep track to it for you
jin and hoseok
would wake up to the sounds of you throwing up
would move to the bathroom despite your protests and help you feel comfortable and safe, holding your hair back and rubbing your back
would insist that they also weren't feeling well and that they would have canceled date night anyways,
would get back into bed with you, supplies already at the ready and would hold you against them, insisting that you can't get their "sickness" anyways
would try and make you forget about your flare up (even if its all they think about) and joke around/ play around with you while keeping you in bed.
would hold you as you cry your frustrations out, waiting and patient for if you want to talk about it
jimin and taehyung
would honestly be a little excited about a date night with you, since their schedules are so busy.
wouldn't notice at first that you were in a flare up, but wouldn't notice something is wrong with the way your body is sluggish and how you run to the bathroom hoping for them not to notice you were sick
would be so upset with themselves for not picking up on your flare up and rub your back slowly
would hold you close, rocking you in his arms as you sit on the bathroom floor, spilling reassurances into you ear
"it's okay, baby. let it all out."
would become frustrated for you, but still holding you close as you cry and let all your anger out.
as someone currently in a POTS flare up, this actually helped me and gave me a lil comfort :)
Just coming back to this for some comfort
one of the hardest things to learn as a depressed former Gifted Kid⢠is that half-assed is better than nothing. take the 50%, 40%, even 20% job. scrubbing your face is better than not taking a shower at all. picking up your clothes is better than never cleaning. nibbling on some bread is better than starving.
DO THINGS HALFWAY. NOW YOUāRE 100% BETTER OFF THAN YOU WERE BEFORE.
One of my college professors used to sayĀ āanything worth doing is worth doing poorly.āĀ I didnāt understand that for years because I didnāt do anything poorly, I couldnāt do anything poorly, I had to Do Everything Perfectly.
But brushing your teeth for 30 seconds is better than not brushing them at all when that 2 minutes seems exhausting.Ā Doing ten minutes of yoga is better than 10 minutes of sitting when 30 minutes of cardio sounds impossible.Ā Changing my clothes is good when a whole shower is impossible.Ā Standing on the porch for a few minutes is worth it after being in the house for three straight days because I donāt have the energy to go anywhere.
Anything worth doing is worth doing poorly⦠because doing it poorly is better than not doing it.
someone please hit me over the head with this post every day for like the next week thanks. a mention, a reblog with text, a message, something.
TDaP vaccine is kicking my butt. Was expecting sore arm but instead got swollen arm and a cough and headache. Why are people okay with getting normal sick over and over? This is just a minor reaction and should go away, but to be sick for two weeks and then have long term problems directly related to that? Itās a no for me. If I can try to avoid getting sick I will because this is ridiculous how bad I feel. Wear a mask yall.
Accidentally missed a doctorās appointment because I straight up forgot. Time for me to be confused and stressed all day about everything and to question my worth even though I canāt change it now hahahhahahahelphahahahhaha
one of the hardest things to learn as a depressed former Gifted Kid⢠is that half-assed is better than nothing. take the 50%, 40%, even 20% job. scrubbing your face is better than not taking a shower at all. picking up your clothes is better than never cleaning. nibbling on some bread is better than starving.
DO THINGS HALFWAY. NOW YOUāRE 100% BETTER OFF THAN YOU WERE BEFORE.
One of my college professors used to sayĀ āanything worth doing is worth doing poorly.āĀ I didnāt understand that for years because I didnāt do anything poorly, I couldnāt do anything poorly, I had to Do Everything Perfectly.
But brushing your teeth for 30 seconds is better than not brushing them at all when that 2 minutes seems exhausting.Ā Doing ten minutes of yoga is better than 10 minutes of sitting when 30 minutes of cardio sounds impossible.Ā Changing my clothes is good when a whole shower is impossible.Ā Standing on the porch for a few minutes is worth it after being in the house for three straight days because I donāt have the energy to go anywhere.
Anything worth doing is worth doing poorly⦠because doing it poorly is better than not doing it.
someone please hit me over the head with this post every day for like the next week thanks. a mention, a reblog with text, a message, something.
'If I'm gonna feel like shit, I might as well have some fun with it,' I think to myself before telling some able bodied person something about my body that's so normal to me just to see their reaction.
Hi! I love all your work, especially as someone who is also disabled and neurodivergent. I hope things have been going well with you! As for a request I was wondering if you could do a reactions kind of thing for BTS to you having a flare up/bad symptom day and youāre really frustrated and upset because you had a date planned or something but you donāt think you could handle it, but you still try to hide it from them. For me I always struggled with severe nausea that is cause by POTS and made worse by anxiety, and I have spent hours crying on the bathroom floor out of frustration haha. Sorry if this is too wordy or detailed, I tend to type whatever I think and just go with it lol. I really enjoy your writing and always come back to it for comfort. Itās such a relief having someone who writes neurodivergent and disabled characters and represents it well. š
as someone with POTS as well, im glad you've found my work and feel like its comforting. that's one of my goals for writing is to help people see themselves in media, as someone who is disabled and/or neurdivergent.
I hope you enjoy this reaction that it helps you feel a little bit more comfort :)
namjoon, yoongi, and jungkook
would notice something wrong almost immediately
hates that you try to hide how bad you feel because it makes them wonder if your feel safe or comfortable with them
would try not to make anything a big deal and just get right back into bed with you.
date night in the bedroom now, surrounded by salty snacks and drinks (with electrolytes) and playing your favorite movies.
would just hold you close and listen to your frustrations
"oh, you need your drink opened, let me"
"oh, you need your snack opened, let me"
"oh, you need to go to the bathroom, let me carry you there."
would check your heart rate and keep track to it for you
jin and hoseok
would wake up to the sounds of you throwing up
would move to the bathroom despite your protests and help you feel comfortable and safe, holding your hair back and rubbing your back
would insist that they also weren't feeling well and that they would have canceled date night anyways,
would get back into bed with you, supplies already at the ready and would hold you against them, insisting that you can't get their "sickness" anyways
would try and make you forget about your flare up (even if its all they think about) and joke around/ play around with you while keeping you in bed.
would hold you as you cry your frustrations out, waiting and patient for if you want to talk about it
jimin and taehyung
would honestly be a little excited about a date night with you, since their schedules are so busy.
wouldn't notice at first that you were in a flare up, but wouldn't notice something is wrong with the way your body is sluggish and how you run to the bathroom hoping for them not to notice you were sick
would be so upset with themselves for not picking up on your flare up and rub your back slowly
would hold you close, rocking you in his arms as you sit on the bathroom floor, spilling reassurances into you ear
"it's okay, baby. let it all out."
would become frustrated for you, but still holding you close as you cry and let all your anger out.
as someone currently in a POTS flare up, this actually helped me and gave me a lil comfort :)
Just coming back to this for some comfort
It sucks being stuck. Especially when you are stuck because of other peopleās decisions. In therapy we always talked about choices I can make to move forward. And now, I canāt because of people who only care about themselves.
Becoming disabled as a teenager sucks, I'm an adult now in my late 20s and I feel like everything is stunted. I feel like I'm emotionally stunted, I never got to do a lot of the things teenagers get to do I don't have a license, I didn't get to study art as much as I wanted to I sit around thinking how good I could have been if I was actually able to dive into my craft I feel like all my skills in every department are just at the stage of a teenager and I don't feel like I can evolve past it. I hate the way this feels. I want my art to be better, I want to feel mature I just don't know how to get there when my disabilities get in the way of that
TW emetophobia? Nothing super graphic
My problems started at age 7/8. I used to feel like I was ahead of people in terms of maturity for a long time because I was forced to deal with chronic illness as a child with no diagnosis and a lot of medical gaslighting (from doctors and adults who didnāt know anything).
Now in my late 20s I feel so far behind; lot of it is socially as I avoided doing a lot because of my symptoms not being understood or under control for my whole childhood and very early adulthood. I have never dated, partly because Iām picky, but also because I canāt imagine dating and dealing with symptoms while trying to get to know someone. Will they be patient? Will they try to understand? Will I be able to go on dates in general? In high school and college I avoided dating mostly because I knew I would probably spend a date in the bathroom trying not to puke and crying out of frustration. I have always wanted to get married and have kids, but I donāt think Iāll get there. Dating is really scary (and almost impossible as someone who is masking still). But I also donāt feel like I could ever live alone, much less manage a household with children. Chores take longer to do than they should, and then takes twice as long to recover. Even then I can feel off for days after some things. I donāt know if I can find someone who would understand and work with me and love me. I think I will just have to live this life alone.
Me lying down: I feel pretty much fine. What am I doing lying around? I should get up and do something. Or at least sit upright, damn.
Me when Iām upright: oh, Jesus. Oh, damn. Oh, RIGHTāthis is why I was lying down.
So how do you other chronically ill people tell someone you are having a bad day symptom wise? Or that you donāt feel good?
I think that it's really important for people to realize that being disabled is traumatic. genuinely. your body and brain feel like they are breaking down and wrong. you are in constant heavy stress from stuff like chronic pain. most disabled people i know have a somewhat regular emotional break down from the trauma of it all. and we are expected to just smile through it by society, to not be in the way, to not be an issue.
When a disabled person says that they canāt do something, we donāt mean that we just donāt want to. We also donāt mean maybe. We mean that we physically cannot do it or that we could, but it could really harm us. We have to pay consequences. You donāt.
What is it called when you are scared of being touched or being close to people because you are afraid they will think you are gross or will hate your touch?
Like mental contamination but instead of worrying about being contaminated, Iām worried about contaminating others in a way?
I feel touch starved but I get uncomfortable just sitting close to someone.
Itās the best when you ask a quiet kid about something they like and their face lights up and they talk more than they have ever talked to you before. Even if you arenāt interested in the same things please let kids talk about their interests.