Abled person: you always talk about your disability.
Me: i know right? it's almost as if it actually disables me, affecting my life everyday??

seen from Japan
seen from United States

seen from Malaysia

seen from United States
seen from Poland
seen from Ireland

seen from Canada

seen from Brazil
seen from China

seen from United States

seen from United Kingdom
seen from United States
seen from China

seen from United States
seen from United States
seen from United States

seen from Brazil
seen from South Korea
seen from United States
seen from Estonia
Abled person: you always talk about your disability.
Me: i know right? it's almost as if it actually disables me, affecting my life everyday??
People that go "oh i wish i could stay at home all the time too" and "oh i wish i didn't have to go to school and could just stay in bed too" when they hear you're chronically ill and / or disabled: no you don't?? Remember the covid lockdown? Everyone lost their minds after three weeks stop acting as if you wanted to do that for years.
if you say that someone’s disability is self-inflicted or that they make it worse because of lifestyle choices like smoking or drinking or not exercising, fuck right off.
my ex (who’s a shitty person anyway but that’s another story) used to say those things to me a lot, that i wasn’t doing everything i can to not be disabled so i deserved the pain i was in, i deserved to faint, i brought it on myself so i deserved it
what she forgot is that i was a cripple before i started doing those things. in fact, i sort of used them to cope for a while because my brain is Not Nice about me being disabled (it’s Not Nice about anything really, but this post isn’t about my brain)
so here’s your reminder that disabled people can smoke, drink, be ‘lazy’ and do whatever the fuck we want, and your opinion on it is bullshit. and if you’re disabled, here’s your reminder that you don’t need to feel guilty for doing ‘unhealthy’ things, we all have our vices, ways of coping and things we just enjoy doing, and anyone who shames you for them can go fuck themselves.
-Avril / Supernova (literally any pronouns)
Fibromyalgia is...
Describing your symptoms to someone, and having them interrupt you to ask if that is what a doctor told you is happening, or if that is what you think is happening (or another similarly invalidating response).
Back to feeling frustrated with my friend who totally didn't listen to me the first time I was brave and basically said don't send me so many video snapchats, and then responded saying I was "overreacting" "just being offended" "always talk about my disability, everyone has their struggles it can't be about you all the time" when I simply opened up and went to the effort of explaining why I can't open all their daily multiple video snaps constantly
Basically because disabled, and I sent the Robin Chronic Fatigue simulator game review video to them to watch, which it doesn't sound like she could even watch one 7 minute review video of a game that would have perfectly explained to her what life with my condition is like and why i don't have spoons/time to keep up with all that, despite expecting me to spend hours catching up on her videos that took her less effort to make than it does me to view and respond as a person living with chronic fatigue and daily sedation. And I thought I was explaining it all nicely and calmly.
And I actually can't afford the stress of dealing with that refusal to communicate properly (me being rational despite being the autistic one?) and instead resorting to hurling insensitive comments to me and tryna gaslight me. No thanks. I am allergic to stress it flares up so many issues for me (my immune system is down already bc of the season changing and being sick etc)
Cue me not opening the snaps again for another month...
My Geology 103 had a field trip today for credit hours we're supposed to collect throughout the semester. At our last stop, my professor decided he wanted us to visit this quarry that was a 10min hike away from where we were. Me, being a human covered head to toe with severe joint pain, was not thrilled with this idea for my body's sake. But my professor made the comment, "You all are young and have healthy bodies. You can go on a hike." Oh dear professor, if only that were true.
"Have you tried meditation?" Yes. Since I was 13. Regularly. I still can't walk.