I really wish there was more interest in how to handle ADHD other than just addressing the symptoms that affect the people around us.
Like, the best pharmaceutical treatment we have right now is stimulants, and I agree that being on stimulants 24 hours a day, 365 days a year is probably not good for your body. Hell, I’m on a less-than-ideal dose of my medication from a concentration perspective because the ideal dose had my resting heart rate sitting at a cool 115BPM. I know taking med holidays is important. I know all of this.
But because ADHD isn’t just an attention problem (or may not actually be an attention problem at all at its core), it sucks that the only time period medical professionals seem to be concerned about treating are the “important” times: the length of a school or workday. Forget the fact that ADHD affects executive function, forget the fact that people with ADHD often experience chronic and unending anxiety and/or depression as a result of the ADHD, forget that there are important times that have nothing to do with an 8-hour school or work day, forget the rejection sensitivity dysphoria, the sensory issues that make things like clothing, food, and group situations a nightmare to try to navigate, the household stuff that has to be taken care of outside of the 8-hour school or work day. It feels like none of that matters because it doesn’t affect a group of fifteen or more people.
On top of ADHD, I have been plagued with anxiety-related issues for the majority of my life. I likely have a form of OCD and I have a history with a restrictive eating disorder; both of those conditions are very closely associated with high levels of anxiety. I’ve been on anxiety medications before. I was first given an as-needed medication that took the edge off but also made everything feel a little fuzzy, like there was a pane of glass between me and the rest of the world; I was put on an SSRI that somehow made my OCD-related intrusive thoughts about 50x worse than usual and had me wondering at one point if I should be hospitalized; and I’m currently on buspirone, which is doing what it’s supposed to do without the side effects of the others thankfully. But nothing, and I mean nothing, has reduced my anxiety as much as my ADHD medication.
Two hours after my first stimulant dosage, I just suddenly didn’t feel on-edge any more. I estimate that being on ADHD medication has reduced my anxiety by about 70% (buspirone’s for the other 30%). I started taking it in the summer of 2020 and I remember, in 2021, when I saw my boss in person for the first time since lockdown, he remarked on how much more confident I seemed, how I was more likely to speak up in meetings, etc. And I was like…yeah, man, it’s a wonder what not feeling anxious every second of every day will do for someone.
ADHD affects so much more of my life than just attention and anxiety, too. I have sensory issues with mine, which is pretty common, and they make eating — an already sometimes-complicated task due to the ED history — difficult at times because, while I can eat foods that I don’t particularly like, if something is what I call “the bad texture”, I will gag no matter how hard I work to overcome it (believe me, I’ve tried). And my brain sometimes decides that foods that were previously fine are now “the bad texture” and they may or may not shift back to being okay eventually; I don’t know.
The sensory issues affect me socially. My therapist and I have recently come to the conclusion that I’m probably not actually an introvert, but if I’m around larger groups, that means noise and movement and probably being touched, and too much of that causes my brain to either freak out or shut down. I used to always say, “I love people, but when I’m done, I’m done.” And that was likely because the overstimulation was building and building in the background, and at a certain point, my brain would just be like, “We gotta get outta here.” I was Queen of Irish Goodbyes for a very long time because of this.
And the executive dysfunction affects…well..everything? Not just work, not just school (but also those because if my environment is chaotic, my brain feels chaotic, and it is difficult to maintain a non-chaotic environment if you keep getting stuck on order of operations when picking up a room).
I’m not saying that I want to be on longer-lasting stimulants or that I want to be on the higher dose that I know helps my concentration more, cardiovascular system by damned. What I’m saying is, I wish treatment research had been more holistic rather than just figuring out what would give teachers and managers an easier time despite what the person with ADHD might be dealing with as soon as their meds wear off.
Maybe current research is working on it; I don’t know. I just know that, the older I get, the more frustrated I am with my brain and the more apparent the deficiencies I used to be able to counteract with pre-chronic-illness energy and crushing perfectionism become, and I wish there was an answer to this that actually helped me most of the time rather than forcing me to pick which parts of my day/week is “important” and making sure I’m medicated for those parts.
