#dsps

[girlmao]

Anyone have any suggestions on things you can do for fun during a moderate flare? I'm so bored today..

[oncillaphoenix]

having a circadian rhythm disorder counts as Horrors Beyond Your Comprehension i think. i mean. not beyond my comprehension, i've lived like this my whole life. but it certainly seems to be beyond everyone else's comprehension, including sleep doctors.

[chronicsymptomsyndrome]

“Winners don’t hit snooze” drop dead actually. Fucking die.

Winners don’t go around assuming everyone is just as privileged and healthy and well rested as them

Winners don’t shame others for whatever accommodations they might need to maintain a decent quality of life

Winners don’t act like pretentious ableist assholes in fact I’m pretty sure winners are perceptive open-minded kind and understanding. Idk

[menasimagination]

you think you understand vampires? try being nocturnal *scoffs*

[disability-shout-outs]

Shout out to folks with Delayed Sleep-Wake Phase Disorder!

[sleeping-reverie]

Being okay with and even liking my DSPS is something I am afraid to admit. Yes, it causes issues with scheduling, and sleep, but to be honest I really like the time to myself.

I feel my most creative at night

But I've been so heavily shamed for it that I feel ashamed to admit it's not all bad.

I spend so much time wishing I could just be normal, but is the fact my circadian rhythm is naturally delayed an inherently bad thing? Would it be seen so negatively if we didn't live in a world where work starts at eight and all appointments at nine? Would it be a sore spot for me if I weren't treated as though I were lazy for simply being?

My DSPS and psychosis are probably the things I feel the most shame about, but is it deserved? I'm starting to think not.

[nonspeakerlibrary]

What makes a good support person

Happy people are essential to my well being because life is greatly difficult when you dearly have a body like mine, that does not respond t

Nonspeaking artist Jeremy Sicil-Kira on the traits he looks for when interviewing support staff.

Happy people are essential to my well being because life is greatly difficult when you dearly have a body like mine, that does not respond to your wishes. Belief in my ability to frankly realize my dreams is important. I need to feel that the support person feels I am capable.

During the interview, truly the most important aspect is the candidate’s ability to listen to what my needs are as described by me. They must be able to understand what my mom tells them that I have said I want in terms of qualities. The most important quality I look for is the ability to learn how to be a good communication partner in supporting my style of communication. I have motor differences and sensory integration challenges that make it hard for me to initiate and get nicely moving and they need the ability to understand about this.

Choosing staff is like choosing friends because kindly great staff and great friends are what makes life worth living. I need to feel that they are interested in me as a real person and not a client.

[bunnyosc]

can i have just one sleep pattern stick please?? ideally one that doesnt make me lose my mind. but at this point i will accept a nightmare sleep pattern if it would last longer than a fucking week. shit it can even be the dumb fucking bullshit of alternating 4 and 12 hour nights i have going on this week. i hate it but its better than not knowing if ill just start waking up at fucking 5pm for the next 2-4 weeks and have my light therapy do sweet fuck all.

the ideal is i maintain a sleep pattern of like 2am-11am for a few months minimum. can you tell how bad my sleep is that i will accept still pretty disordered sleep that will still fuck up employment option and ability to maintain relationships as the fucking best case scenario??? mild-moderate dsps is the fucking dream right now when im constantly on edge abt the fact that when im managing a constant number of hours of sleep (i.e not right now bc fuck my life) im getting scalloping (a bad sign tm bc it means my circadian rhythm is just about holding onto entrainment by its nails).

ofc the unachievable and unrealistic ultimate dream scenario is that despite the severity of my dsps i am one of the lucky ppl who grow out of it in their mid-20s, but tbh i try not to consider that too much bc if i cling onto it as a real possibility and then get through my 20s without improvement/only mild improvement i will kill myself, but ill probably do that anyway if my dsps continues at this severity or even worse case scenario i develop non24 so who even fucking knows. maybe i find the magical vitamin (probably melatonin but its not otc in the uk and moving internationally when i cant get a fucking job is highly unlikely (plus only sleep specialists will prescribe it for long term issues so unless i can either have a miracle and find a good nhs sleep specialist without a thousand year waitlist (lmao im more likely to win the lottery atp) i need to have enough money for private healthcare which considering that my dsps prevents me from really working a job is not really on the cards))