#dsps

[girlmao]

Anyone have any suggestions on things you can do for fun during a moderate flare? I'm so bored today..

[oncillaphoenix]

having a circadian rhythm disorder counts as Horrors Beyond Your Comprehension i think. i mean. not beyond my comprehension, i've lived like this my whole life. but it certainly seems to be beyond everyone else's comprehension, including sleep doctors.

[menasimagination]

you think you understand vampires? try being nocturnal *scoffs*

[glittergroovy]

[chronicsymptomsyndrome]

“Winners don’t hit snooze” drop dead actually. Fucking die.

Winners don’t go around assuming everyone is just as privileged and healthy and well rested as them

Winners don’t shame others for whatever accommodations they might need to maintain a decent quality of life

Winners don’t act like pretentious ableist assholes in fact I’m pretty sure winners are perceptive open-minded kind and understanding. Idk

[sleeping-reverie]

Being okay with and even liking my DSPS is something I am afraid to admit. Yes, it causes issues with scheduling, and sleep, but to be honest I really like the time to myself.

I feel my most creative at night

But I've been so heavily shamed for it that I feel ashamed to admit it's not all bad.

I spend so much time wishing I could just be normal, but is the fact my circadian rhythm is naturally delayed an inherently bad thing? Would it be seen so negatively if we didn't live in a world where work starts at eight and all appointments at nine? Would it be a sore spot for me if I weren't treated as though I were lazy for simply being?

My DSPS and psychosis are probably the things I feel the most shame about, but is it deserved? I'm starting to think not.

[disability-shout-outs]

Shout out to folks with Delayed Sleep-Wake Phase Disorder!

[nonspeakerlibrary]

What makes a good support person

Happy people are essential to my well being because life is greatly difficult when you dearly have a body like mine, that does not respond t

Nonspeaking artist Jeremy Sicil-Kira on the traits he looks for when interviewing support staff.

Happy people are essential to my well being because life is greatly difficult when you dearly have a body like mine, that does not respond to your wishes. Belief in my ability to frankly realize my dreams is important. I need to feel that the support person feels I am capable.

During the interview, truly the most important aspect is the candidate’s ability to listen to what my needs are as described by me. They must be able to understand what my mom tells them that I have said I want in terms of qualities. The most important quality I look for is the ability to learn how to be a good communication partner in supporting my style of communication. I have motor differences and sensory integration challenges that make it hard for me to initiate and get nicely moving and they need the ability to understand about this.

Choosing staff is like choosing friends because kindly great staff and great friends are what makes life worth living. I need to feel that they are interested in me as a real person and not a client.