Disability Blog!? Yes. @eds-pots - Tumblr Blog

At this point just call me legoles

#chronic pain #spoonie #chronic illness #disability #heds #hypermobile eds #ehlers danlos #ehlers danlos syndrome #hypermobile ehlers danlos #living with pain

love-me-love-my-weirdness

Shout out to the ten year old who just got diagnosed. Shout out to the housebound fourteen year old. Shout out to the eighteen year old who can’t go to the university they wanted. Shout out to the twenty two year old who can’t get a job. Shout out to the twenty six year old with a caretaker. Shout out to the thirty year old who can’t buy their own house.

Shout out to young disabled people. We exist.

cute-catts

yeahiwasintheshit

finally a video you can unmute

sirartwork

reblog for noises

kanguin

Are you trans-feminine? Intersex? Do you have a connective tissue disorder like Ehlers Danlos Syndrome? Do you have erectile dysfunction? Are you any other kind of person who has a penis? Do you just want to see the results?

Then please take this survey! I'm looking to gather a large sample size of anonymous information for a personal study on the relationship between age, gender, hormone replacement therapy, and connective tissue disorder on erectile function. It won't take more than a minute or two. Even if you're none of the above groups, I'd love for you to pass this around.

I'm trying to collect data for a personal project on erectile dysfunction and a cross of multiple other demographic and health conditions.

I've also shared this on Reddit!

positivityoutsiderecovery

"Your disability doesn't define you" Okay but what if it does? What if my disability is inherently entangled in who I am and how I experience my life? Would that dehumanize me in your eyes? Because then that's a you problem you shouldn't project onto me

#spooniestrong #spoonie #disability #chronic illness #chronic pain

chronicallycrappy

Chronically ill and disabled people:

do you take your pills water first then pills, or pills then water?

pills then water

water then pills

take without liquid

other

Voting ended onApr 5, 2023

valtsv

talking to other people with chronic pain is a simultaneously healing and enraging experience

valtsv

my brother in suffering if it weren't for my aching joints i would lay waste to everyone who has ever ignored and belittled you at the expense of your health

thedisablednaturalist

Take what you need, and pass it on ❤️

pain relief

rest

stability

happy stomach

calm mind

a comforting presence

Voting ended onFeb 19, 2023

under-same-sky

potsiepumpkin

When you eat what you thought was a “safe food” and suddenly your stomach turns on you.

eds-pots

It feels like I stepped into a mushroom circle and transported into the fey realm where words though true are twisted into things I don't recognize. "Safe Food" Years ago believe these words I did, brought pain and misery in the end. Now old and wisened, trickery I see in these words before me. Nothing is safe unless it meets all the checks, even than a thousand questions always left.

#spoonie #chronic pain #chronic illness #disability #chronic fatigue #chronically ill #disabled

doresworld

When you are rapidly approaching week three of getting less than six hours sleep a night with pain permanently sitting at an eight/nine

eds-pots

Also failing school because of it

#spoonie #chronic pain #chronic illness #disability #memes #chronic fatigue #chronically ill #disabled

theunusualchameleon

Approximately 7 million Americans use mobility aids. Our goal is to create a more comfortable, user-friendly wheelchair or possible attachments that can be subject to the trials and stresses of everyday life. We need your help pinning down exactly where problems lie, and what features are most annoying or appreciated already.

Help Engineering students understand wheelchair use!

We’re working on a redesign of the standard manual wheelchair, but need more information on the everyday use of mobility aids in general, and wheelchairs specifically. There are disabled people on the team, but we’re looking for as much data as possible in regard to what does and doesn’t work currently.

If you use some sort of mobility aid (any type), please, please, PLEASE fill out this form. If you don’t, please reblog to signal boost. This is vital data and may determine whether my teammates and I pass this course.

#disability #mobility aid #wheelchair #crutches #cane user #chronic pain #chronic illness #mobility #survey

didebauchery

Dude I wish I were faking my disorders, do you know how annoying it is to live like this? Lmao.

teaboot

Someone once told me that I was annoying because I couldn't focus or remember anything and all I could think to say was "at least you can walk away- I live here"