TW// vent, disability, sh/sui, abelism, personal disability experience (long post btw)
is there a term for frustrated autistic people who insist they can be independent and low needs but get super stressed and exhausted over part-time jobs and cannot manage their money and have an angry meltdown when they’re called a child and just feel like the world is against them and just get mad when their chores are done for them (even if they get super stressed and exhausted when doing them)
i’m autistic and people say i can’t live in a group home due to my disability and mental health and i get super exhausted easily to the point where if i don’t set my alarm i sleep past noon and always lie down in public places (society can’t tell me what to do)
i try my best to be independent. i sleep on a made bed with my favorite blanket and fold it when it’s time to get up. (i’m not good at folding. i just roll up the blanket like a cinnamon roll)
i try to cook but i’m not allowed to cook raw meat in the group home. i have to make premade frozen meals like ramen or pizza.
i go to work but i can’t work more than two days or they’ll cut my ssi and i have a hefty credit card bill to pay. even if i wanted to work two days they only set me up for one week, four hours. $14.50 per hour. and they give me the same job every time. despite being introverted, i’m pretty bubbly sometimes and i want to work with others. they put me in the backroom. alone. and sometimes they don’t explain instructions to me when dealing with new tasks, and it stresses me out to the point where i have a meltdown.
speaking of meltdowns my meltdowns are usually silent because everyone i knew saw me as a “high functioning” autistic when in reality i struggle in things like managing emotions. when i have a meltdown that’s silent. i’m usually breathing heavily, whimpering like an kicked puppy, sometimes clawing at arms scratching harshly like i’m allergic to negative feelings. i whisper-scream obscenities and cuss words and i wish death and extinction on the human race (including myself). i don’t like discussing sh but when i have meltdowns i need to stay away from sharp objects, including my own fingernails.
Usually I wear my noise-cancelling headphones when I’m out because not only am I sensitive to noise, but I love having something to listen to when I’m out, it’s self-regulating. My parents always make me take off the headphones when I’m with them, and they comment on how I jump or react to noises. When I’m overstimulated I walk outside and put my headphones on. Sometimes I watch youtube, other times I people watch like I’m an alien studying humans.
My parents also make fun of my stims. I have this big stim where I run around aimlessly. My brother used to make fun of it and call me a chicken. I’ve sorta reclaimed it but it’s whatever. I have different stims, I stick my tongue out without realizing, I stim with my fingers and shake when i’m angry and/or having intrusive thoughts of violence, i lick my nose if it feels full (it’s disgusting i know, i wish i didn’t have that stim), and i bounce my leg when i’m anxious or in a really awkward position. I’ve had family members manually stop those stims, or even charge me for stimming. because like yeah, you support your autistic child until they stim.
Plus autism made my mental health worse. I got the autism with extreme empathy, so I get very overwhelmed over human rights or politics. I was banned from watching the news because i tried offing myself over hatred for marginalized groups several times. I even hid tiktok because doomscrolling everything going on right now easily sends me into a downward spiral
i wish i could just dump everything about my autism into this post but it feels exhausting. idk if i’m lazy or stubborn or mentally ill or all of the above. there are times i wished to be normal but honestly autism is forever and i just need to embrace it.