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@michellemiyagi
Long COVID Awareness
Iāve been living with #LongCOVID since my COVID-19 infection February 25, 2020. I am sharing my story during #LongCOVIDAwareness Month, but especially on #LongCOVIDAwarenessDay 2026 to raise awareness. We need to mitigate, stay vaccinated, clean the air, and wear masks to prevent #LongCOVID from decimating everyone, especially children who need protection! The science is clear that everyā¦
Long COVID Advocacy
(via Narcissistic Abuse Never Ends)
For those of you who donāt know about narcissistic abuse. The comments in this photo are an example of how a flying monkey behaves. Definition of a flying monkey: In narcissistic abuse, a ā¦
If you or someone you care about has a chronic illness, especially one that no one seems to know much about, one of the most useful things you can do is follow patients who post about that illness and/or chronic illness in general.
You can learn more about current research and other important information from patient advocates on Twitter (and Tumblr) than your doctor is likely to directly tell you. Some will post about current research on the illness. Read the articles they link and read and try to understand the published research studies.
(Pay attention to the sample sizes of the studies - the smaller the study, the bigger grain of salt you should take it with - and be wary of news articles that talk about potential cures or treatments without a published research study to link to.)
Patient advocates are often some of the best informed people about illnesses that most doctors donāt know much about. Many of them attend medical conferences and have learned enough to understand the published research.
On top of that, it can really help a sick person feel less alone to see other people sharing similar experiences, and if youāre a loved one of a sick person youāll be able to understand more about what theyāre going through.
I have ME/CFS, an illness thatās really not understood by the general public. Patient advocates have helped me find out way, way more about whatās going on with my body than any doctor. Theyāve helped me know about and understand important research journal articles that helped me understand the right ways to handle my illness, and gave me hope with news of drug trials that I never would have heard about otherwise.
And my amazing partner, who is on Twitter and who is the one finding a lot of this information, knows so much better how to support me because sheās well-informed about what Iām dealing with.
Venture
Iām so grateful I got to enjoy a visit with the kids recently. It was so wonderful to hug them and bask in their presence. We went to Meow Wolf! I was more active, and it felt amazing!After doing loads of research and reading, I discovered a medication and supplement that is helping with Long COVID. This book, in particular, was extremely helpful.ā¦
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Long COVID is like ME/CFS
Long COVID is likeĀ ME/CFS
Hi, yāall! Iāve not been making videos because Iāve been looking after my health. Over the summer, I have been resting more. I last made a batch of videos in May. Iāve been struggling with Long COVID since falling ill on Feb. 25th, 2020. The first year was not as bad. I even had six months after I got the J&J vax when I was almost totally well. Then Nov 2021 I relapsed, and itās been worse everā¦
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Aging and Discernment
Something I love about being older is my ability to discern whatās important and worth my energy. Looking back on my life, I see how much pain I went through wasting my efforts on insignificant things. I believed things that werenāt true, agonized over reaching perfection, and was ashamed of my physical appearance, and minor mistakes I made. Now I know it was nonsense. But I didnāt know anyā¦
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Being Grateful
Gratitude is a practice I do daily. I can always find something to be grateful for and it uplifts me. On most days, it keeps me positive and hopeful. Itās not a cure-all, nothing is, really. Though knowing my loved ones are safe, happy, and well comes close. Being grateful is another way to keep me resilient and focused on what matters most. For me, what matters is living life well, byā¦
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Coping With Eco-Anxiety
Humans have always been worried about natural disasters and the worldās end. Lately, though, itās feeling like itās getting increasingly out of control. The environment is degrading faster than predicted because of climate change. Itās only logical to want to help prevent further destruction? But how big of an impact can one person make? Itās not up to the individual to create this hugeā¦
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Long COVID Risk
People are behaving as if the pandemic is over? Itās alarming to me because my life has changed drastically because of Long COVID. Here I am, over 27 months later, still sick. Anyone can end up with Long COVID. You can have an asymptomatic COVID-19 infection and still suffer from long COVID. There are millions coping with long COVID. It can debilitate and devastate. There have always beenā¦
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Why Not Just Leave?
Why Not JustĀ Leave?
I know, Iāve thought it beforeā¦āWhy donāt they leave?ā My perspective changed when I learned more about abuse and realized people had abused me and I thought it was normal behavior? I tried to deny it and talk myself out of what I realized. But once you become aware, you canāt take it back. You know the truth and itās hard to minimize and make excuses or justify the abuse anymore. Instead ofā¦
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Narcissistic Mind Games
Manipulative people are emotionally immature and have a fragile sense of identity. If you try to hold them accountable for their abusive behavior, they will defend themselves because they canāt admit they may be wrong, or that they have faults. When you address problems with them, they will play mind games with you and bring up the past, antagonizing and attacking you, so they put you on theā¦
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Jekyll and Hyde Personality
Jekyll and HydeĀ Personality
If youāre in a toxic, manipulative relationship, people may not know what you are truly experiencing. Manipulative people are skilled at hiding their abusiveness in public. They may charm and be well-behaved in front of others, but are abusive at home or in private. If you inform others about whatās really happening, trying to get help, the abuser may twist everything around, start a smearā¦
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When to Break Up
When to BreakĀ Up
Itās so hard to end a relationship, especially for women. Weāre taught to be selfless and always consider everyone else first. Weāre socialized to be codependent, to sacrifice our wants and needs to please others. So weāre not really codependent, weāre just conforming to the ways our culture expects us to. Society has taught us to defer to others and to be nurturing to others first. Itā¦
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Cheery Convalescing
Recently Iāve done some inexpensive, simple decorating to cheer up my environment while Iām spending a lot of time at home. It really helps! ā” https://michellemiyagi.com/2020/10/29/this-precious-life/ https://michellemiyagi.com/2020/06/13/adore-cherish-love/ Hi! I was an RN, BSN in mental/behavioral health for 27 years. Now Iām helping empower caring people like me to prioritize themselves byā¦
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Mutual Abuse?
There have been discussions recently about the concept of mutual abuse. In most domestic violence cases, mutual abuse is not true. There is an abuser who has more power than the person they are abusing. The person being abused may fight back, but that is not mutual abuse. Men typically have more power than women and in a majority of cases, it is men who are abusive though women can be abusers asā¦
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