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“Introducing ‘Energy Limiting Conditions’: The Emergence and Evolution of a New Impairment Concept”
Free
<p xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" class="first" dir="auto" id="d1540804e129">The terms “energy limiting condition” (E
Sympathetic exploration of topic
Lets say someone with severe fatigue and dietary restrictions had a caretaker that barely ever thought to consider what that person would be able to eat and said caretaker barely bought anything they could eat forcing them to eat only instant food and low nutritional food due to an inability to cook a full meal. They are restricted due to body issues + migraine + nausea triggers and would legit be harming themselves by eating it.
Would you consider this situation neglect?
yes
no
unsure // check answers
Asking for a friend :/
Also what if this issue caused the person to gain a lot of weight due to a lack of access to healthy foods? What if their caretakers belittled them for their weight? What if theres also history of neglect (medical, physical, emotional)?
I recently started to teach Finn how to pull into his harness.
“Why would you ever want to teach a service dog how to pull??”
Well this is a task called forward pull (forward momentum pull, forward momentum, etc). This a a task were a dog pulls into a harness in a controlled manner to assist the handler. It is similar to guide except there is more force being put in harness and the dog isn’t making any kind of directional decisions.
I am personally teaching this task because I have been struggling with extreme fatigue. Last school year it was such a problem that I would get to school and couldn’t walk to any classes because I was so exhausted. So this year I am planning on using this task for him to pull me to class when I am fatigued. As well as maybe using it when I’m dissociated or overwhelmed.
Oh, the comparing.
The comments make me want to bang my head against a glass door.
"I've HAD Myalgic Encephalomyelitis"
Followed with:
"I had to pay to go PRIVATE"
They continued:
"it took me 5 YEARS (to go back to work)"
**you** had BURNOUT.
They ain't the same. Stop.
I hate this. All of it.
Hey besties,
I need some advice. I need help convincing my mom to allow me to get a wheelchair. Our medical aid will cover it so money is not the problem. I'll explain what I have and what her problem with me getting a wheelchair is:
20 years old
POTS
Raynaud's as a secondary condition
Autistic
ADHD
The POTS was diagnosed July 14th 2022
Today is September 1st 2022
Autism was diagnosed December 15th 2021
I've obviously had the autism my whole life though.
And POTS since puberty. It's idiopathic POTS meaning they don't know what caused it.
My POTS has gotten worse since I first got it, particularly in the past 2 years.
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I need a wheelchair. I have immense fatigue as well as attacks of headaches and extreme nausea that can come on suddenly.
I mean I'm nauseous pretty much all of the time but it can become way worse just randomly.
The wheelchair would be to help with the immense fatigue.
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My mom agreed (semi-reluctantly but still) that I could get a wheelchair. This was a week or two ago.
She (able-bodied and prone to ableism) changed her mind after talking to her (able-bodied) therapist.
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This morning she came into my room to start yelling at me and say that no I can't get a wheelchair.
My fatigue is apparently caused by the fact that I'm unfit.
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She called me getting a wheelchair a regression and she says that I glamourise disability and being disabled because of youtubers like Jessica Kellgren-Fozard.
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(I have made her watch a few including Jessica's excellent video about having a mobility aid not meaning you're giving up and I watch Jessica quite a lot I like her.)
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(I do not however want to be disabled. Obviously? I wish I had the energy to be out all the time and living not in my house and working and earning my own money and seeing my friends and not be in pain all the fucking time. I do not glamourise disability.)
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The point is she's ableist and she loves me and so she's worried that I spend too much time in bed
(^^ caused by lack of energy, which is not going to be cured by exercise. Exercise is not a fucking magical cure)
She's worried because I should be out with my fellow young people.
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She thinks I need to try exercising with a biokineticist, and go to her chiropractor, and try the new meds for an unspecified period of time before she will, maybe, agree to me getting a wheelchair.
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I'm devastated. I was nervous but so excited about getting a wheelchair because it would mean I could see my friends more.
And go on walks without worrying I was going to be too tired to come back.
It would mean I could unpack the dishwasher without using half my energy.
It would mean I could go to Pride next year and not be in immense pain for a week afterwards.
It might mean I could get a university degree.
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Of course my mother thinks I could and should be doing all these things now and that I'm just too unfit and that's the whole problem.
I'm not disabled, I'm unfit.
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She's said she'd rather drive me to the park so I can hang out with my friends there and then drive us back than me have a wheelchair.
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Please help me if you can. Any ways your wheelchair has helped you do more?
Or function better in our ableist capitalist society?
Has it helped you to have more energy or less nausea somehow?
Have you ever convinced a parent/guardian to get a wheelchair?
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I wish I could move out but I can't live alone. I'm in the process of applying for a disability grant but it's so pitiful here in South Africa it's maximum R1900 which is 110 US Dollars/110 Euros/95 British Pounds.
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Thank you in advance for your help, I appreciate it <3
P.S. Most of the post is in a big font so it's easier to read for other disabled peeps :)
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disabling and complex illness.
My CFS has gotten worse the past 6 months. Add ADD to that & it’s really challenging to do a lot of things lately, especially for more than 4 hours 😑 On the bright side, I don’t have any pain often associated with CFS/ME so there’s that 🤷🏼♀️🫤
I travel a lot & do fun things but what you don’t see is me when those things are over. For instance, when traveling to a destination, I’m pretty much done by the time I arrive. Shows, walks, etc can be done for maybe 4 hours but then I crash hard & need time to reboot. It sucks 🫠
My head often feels foggy & weird, kinda like when you’ve been up for 24 hours & are trying to function. Whether I get 8 hours of sleep a night or 2 hours, I always feel awful, like I barely slept. CFS is awful
Unfortunately Adderall & Ritalin start to not work as well for me after I’m on them for extended periods of time. At first they’re great but then I’m back to square one 🤪 I was first prescribed Ritalin for ADD when I was 13. That’s a really long time!
I best describe CFS kinda like having the flu & getting maybe 3 hours sleep a night. Everything feels heavy, like you have weights attached to you & it’s often hard to focus/think clearly 🤪 No amount of sleep, exercise, diet, etc helps 🤷🏼♀️ On the bright side, with “Long Covid” being a thing now, CFS is getting more attention & is slowly being taken more seriously
I have another doctor appointment tomorrow. Over the years I’ve learned that most doctors are the same. They do blood work, it looks fine. That’s that. They can’t help me with my CFS cuz there’s no formal test or treatment & they’re not very well versed in the condition 😑 I’m just used to living this way 😞
i need go eat something but my body is too exhausted to get up and cook. after i got back home i slept for so long and i feel myself struggling to stay awake again. doesn’t feel good. i haven’t ate anything but ice and tortilla chips today. this fatigue is something else. i struggle to lift my own goddamn arms.
hot take I know but endometriosis fucking sucks
