The things you hear doctors say when you are disabled is always medical abuse and neglect.
I have been told my two week long neck pain the was so severe I couldn't turn my head one direction was because I have a fan in my room. Turns out it was because my bed was tilted and my body was being smashed into my head.
I have been told that the visible shaking was "a perfectly normal amount of visible shaking"... what is the "perfectly normal amount of visible shaking" you might ask? None. Everyone has some shake to their hands and such, it should never be visible or noticeable unless when holding a pen or pencil and even then.
"Seeing double is normal" literally isnt still dont know why I do that.
"These seizure episodes are all very different" they werent "very different" they were sort of different in the way you expect epileptic seizures to be different. "You dont have epilepsy" okay then explain why my topiromate gets rid of them? Fuck you.
"You should just exercise" okay how do I do that without hurting my joints due to heds? How do I do that without passing out due to pots? How do I do that without aggravating what is most certainly mcas? "I'll research it" never to be heard from again but to be told to vaguely exercise again.
This is all in one location and I dont think most people would guess the right location.
I've had a doctor tell me to eat a fucking banana when I said I thought my potassium was low again. Yeah that'll fix it.
I've had doctor's over and over and over tell me im too young to have these problems. And then get offended when I end the appointment. "I didnt mean it like that." I dont give a fuck how you meant it, it was condescending and dismissive, fuck yourself.
I've had combative and drug seeking in every single fucking chart I have ever had because I dared to advocate for myself.
You dont just walk in somewhere and get diagnosed with all your fucking problems and chronic illnesses. And you certainly dont waltz into an er and get answers, they cant diagnose you and even if they could they fucking wouldnt because they'd rather send you home with some fucking ibuprofen. I still dont have answers for half the shit wrong with me and even with the answers I do have I have no idea what to do with them except to get fucked. I need a wheelchair in a place that is so inaccessible that 90% of the time its better to just stay home.
And they won't ever give a fuck unless you are a cishet white man or if your cishet white husband tells them its interfering with your sex lives. People have literally brought cishet white men to appointments with them to pretend to be their partners to say exactly that and it got them fucking results.
That shouldnt fucking happen.
I shouldn't be stuck wondering if my life is just... sitting in a room for the rest of my life wondering if there's something I could be doing but the doctors wont tell me. They should be able to tell me how to handle it or refer me to someone who can. But they dont want to do that. So I mourn the person I was and the person I could be instead.