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diagnosed with hyperandrogenic pcos with insulin resistance and i have symptoms of some form of cah likely ncah and i am so angry at myself and im so afraid of getting type 2 diabetes because its my fault. trigger warning for weight talk and internalized fatphobia but i stupidly decided to weigh myself and I went up 3 whole pounds within a week. i feel so angry at myself because im eating breakfast again and not constantly exercising so i know its from that and im afraid im gonna give myself diabetes if i get back up to 200 again. I dont want to let my mom down because she would totally blame it on my eating habits because she blamed it on her own despite her having hyperandrogenic pcos with insulin resistance and likely ncah most likely. and i am just at a loss of what to do. my a1c is low enough to be reversible but im scared it'll go into diabetes if I go back to 200 lbs and I am already mid fat to super fat at my typical weight (within 180-220 lbs) and I don't want to be the one whose problems are all my fault im already blamed for being bald because "the fatter you are the more androgens you have" according to my endocrinologist and dermatologist im sick of it i just want to stop feeling too "masculinized" to not have sympathy

(sounds rough. hope it gets better for you soon.)

#hyperandrogenic pmos #pmos experiences #cah #ncah #cw internalized fatphobia #cw fatphobia #cw weight

Kohane Asuzawa from Project SEKAI is intersex, pansexual, non-binary and transfeminine using they/she pronouns, and their variation is Non-classic Congenital Adrenal Hyperplasia (NCAH)! She also has autism and anxiety.

Requested by @silkie-fable-moth

Intersex flag-only and popular transfem flag edits under the cut!

Do any intersex people especially those diagnosed with NCAH (non-classical congenital adrenal hyperplasia)(i think) have any experiences that could help others seeking a diagnoses?

I don't know how to go about this with my doctor but I would like to know if I have it. For background I am ftm and diagnosed with pcos. (there was no testing done though, just irregular periods + androgenic characteristics and a family history of pcos)

Sorry if this is disorganized, I'm awful at asking advice and formatting on mobile. Thank you anyone who read through and esp anyone who answers. I'm feeling lost right now.

I'm also wondering how this would affect testosterone therapy in thr future.

#pcos #ncah #congenital adrenal hyperplasia #intersex

CAH wojack

#intersex #CAH #ncah #congenital adrenal hyperplasia #nonclassic congenital adrenial hyperplasia #biology #from my own little galaxy world

In terms of being transmasc + intersex... I feel less "female to male" but "intersex to different presentation of intersex"

Like yeah I wanna look different but just. In a different way that some people with my variant look.

I want a micro penis instead of a micro vagina. I wish that I wasn't on estrogen my whole teenage years and was able to have the full extent of what was probably hyper androgyenism. I wish I didn't highten my voice to the point of chronic vocal strain when I hit puberty because I noticed how my deep voice intimidated people. I wish I deepened my voice with a fem affect from the beginning like I wanted to. Instead I had a high voice with a gruff sort of affect because I felt so intimidated back.

#from my own little galaxy world #intersex #ncah #congenital adrenal hyperplasia #intersex transmasc #ftm #lgbtq #queer #genderqueer

still find it strange how my intersex diagnostic process went because it never got finished and its been years

the psych ward forced me to go see some random shitty endocrinologist after forcing me to take a medication to "feminize" me (under threat of being labeled noncompliant and having "privileges" like going outside or socializing taken away)

he told me i had 3 hormones that were higher than usual and that the test results were borderline/inconclusive which... in retrospect may be because of testing or interpretation errors since. this was forcibly arranged by the state and not informed, specialist care for intersex variations.

cause he just diagnosed me with PCOS "for now" and told me i should get a follow up with a different endocrinologist who knows more.

but all he fucking did was make it so no one wants to actually finish the diagnostic process, because im already diagnosed with PCOS. now called PMOS.

though i wonder if they did or will be changing the criteria. gives me a doctor-friendly excuse to get re-tested.

doctors really need to be more careful about how they use placeholder diagnoses i swear to god its infuriating. they've gotta know once somethings on paper it carries more weight than reality sometimes.

TL;DR : i had an ACTH stimulation test (pretty sure) and i have no idea if i have CAH or not somehow but the hormones i have in excess are both androgenizing and estrogenizing. which. if one was progesterone. then. i probably have CAH but i can't remember or get my results back.

#ifairy #jules rants #intersex #cah #ncah #pcos #pmos #hyperandrogenism #intersexism #ableism #saneism #psych survivor #CIMI #medical abuse #medical trauma

Ilia Amitola from RWBY is an intersex butch lesbian, and her variation is Non-classic Congenital Adrenal Hyperplasia (NCAH) with hirsutism and vulvar hypospadias!

The requester elaborates: “ (the lesbian part is canon, confimed by the creators). Her best friend Blake is a trans girl, and they scam doctors by getting them to prescribe Ilia estrogenizing HRT that she then gives to Blake ”

Intersex flag-only edits under the cut!

Tōshirō Hijikata from Gintama is an intersex aroace tris man (link) using he/hie/ze/ne pronouns, and his variation is Non-classic Congenital Adrenal Hyperplasia (NCAH) with a precocious puberty, hyperandrogenism, oligomenorrhea, infertility, and a micropenis!

Requested by @vamprinc