#unchargeables

[dmnsqrl]

Posted @withregram • @pacingpixie Revolving doors 🖕🖕🖕 ID: Translating Inaccessibility There are cartoons of different examples of inaccessibility. First a picture of stairs and underneath it says "You aren't welcome here." Then a picture of a high up Bank counter and "You're invisible to us so we overlooked your existence" then a picnic bench and "just go away pls. Thx." Then a fire hydrant in the middle of the pavement and "We don't expect Disabled people to go outside". Then a theatre with flip down chairs and no other space and "We haven't realised that it makes financial (as well as ethical) sense to be accessible." Then a picture of a revolving door and "F*ck off and die already!" #disability #disabilityadvocacy #disabilityawareness #disabilitypride #accessibility #accessibilityforall #thefutureisaccessible #accessislove #accessible #wheelchair #wheelchairdontcare #babewithamobilityaid #spoonielife #wheelchairuser #wheelchairdontcare #chronicillness #chronicallybadass #invisibleillness #unchargeables #differentaidsfordifferentdays #ambulatorywheelchairusersexist #americanswithdisabilitiesact #inclusion #disabilityinclusion #mobilityaids #disabled #spooniesupport #nospoons #universaldesign #architecture https://www.instagram.com/p/COdQmeZjcHdfTG9gLygunGPEBmEvOPgAcavcSQ0/?igshid=1xvd3k780a8v3

[livinglifewithpots]

A sad reality majority of us live with.

Is there anyone who gets it and is always there for you? Maybe a fellow spoonie, a friend or family?

[prettysicksupply]

For. Real. #chronicillness #chronicpain #disabled #disability #spoonie #invisibleillness #unchargeables (at Wilmington, North Carolina) https://www.instagram.com/p/BnDE_8XgVyG/?utm_source=ig_tumblr_share&igshid=1funs4e4rtw6y

[amidthefallingsnow]

It’s always kind of amazing to me how people show who they really are when your ill. I’m a cashier and it’s a small niche kind of clientele so I see the same customers at certain times.

One couple, older, come in once or twice a week. The man has teased me since I started working there. I HATE being teased and I don’t laugh at the stupid jokes when he’s using me at the expense to be funny. But a couple weeks ago his wife noticed my limp. She asked me what was wrong. I politely said ‘oh thank you but I’m okay’ and I moved on. She asked again. ‘Really I’m okay.’ I said this in a more dismissive tone. She asked me again, this time addin ‘ I’m just concerned’ and I couldn’t say ‘ no obviously you’re not just concerned or you would be satisfied with my original response. You just want to satisfy your own curiosity, and I won’t let you. It’s not about you move on.’ But what I did say was ‘it’s nobodies business.’ This pissed her off royally. I haven’t seen her since.

I expected to hear about this, from a manager or something. But I haven’t yet. If and when I do I’m going to ask what if the situation was reversed? What if I the cashier poked and prodded at her for information about something that wasn’t any of my business. It wasn’t related to the job in any way. It wasn’t about the store. It was about me. It was something I wasn’t willing to share and I’m not going to break down and tell someone I’m sick, there’s no cure, we don’t know what it is exactly when I don’t feel safe. I barely know the woman.

Second there’s a guy I see about three or four times a week. We used to joke around and talk. But in the middle of me being really bad off sometime around August. I was having a one of those pain days where it hurt to talk almost. I was working and he came through and told me to smile. Fuck off. I didn’t smile. I told him I wouldn’t smile and in a dismissal way I said ‘ I’ll smile when you say something funny. ‘

[dmnsqrl]

Posted @withregram • @pacingpixie *Yes, everyone dies, but killing off Disabled characters is so common it's become a trope - for more information - https://tvtropes.org/pmwiki/pmwiki.php/Main/BuryYourDisabled It's a low bar, folks. - ID An Ableism Metric for Narrative Media If the answer is 'yes' to any of the following, the media is likely ableist. Does the Disabled character: 1. Die?* (Killing Eve, Inside I'm Dancing, Of Mice and Men, Survivors) 2. Want to die? (Me Before You, Million Dollar Baby, Glee, Night' Mother) 3. Live but primarily to inspire, evoke pity from or be 'saved' by other characters/the audience. (The Secret Garden, Christmas Carol, Fundamentals of Caring, The Miracle Worker) 4. Live but with a narrative based mostly on their disabilty and/or the negative effect it has on their life? (Come as You Are, Penguin Bloom, The Sessions) - #ableism #ableist #ableismistrash #disabilitypride #disabilityisnotinability #disablednotdead #disablednotless #disabledactress #accessibilityforall #thefutureisaccessible #chronicillness #chronicillnessawareness #disabilityjustice #spoonielife #spooniecommunity #unchargeables #inclusionrevolution #inclusion #accessislove #disabled #representationmatters #represent #wheelchairuser #nothingaboutuswithoutus #disabledandproud #disabilityisdiversity #disabilityadvocate #disabledandcute #chronicallyfabulous #disabilityawareness https://www.instagram.com/p/COdR2l2jf7Gtu1YZXYJ57TJujva-ancPHWPAV00/?igshid=ezjsbbk926w1

[dmnsqrl]

Posted @withregram • @pacingpixie Self care is a privilege. Being chronically ill means constantly prioritising and sacrificing tasks. What do you risk doing yourself? What do you ask someone else to do? Have you asked for too many things? What if you don't get the vital thing done? It's a calculator ticking over every day, as we barter, struggle and compromise to keep our heads above water. ID The Self Care Equation (Or why my hair is dirty, skincare nonexistent and I'm still wearing PJs at 3pm) Underneath it says 6 tasks to be completed - 2 tasks carer can complete - 1 task I can complet = 3 tasks not completed. Above this summer there are icons corresponding to different tasks: Hairbrush, washing machine, shower, cutlery, toiletries bottles, cleaning products. In the first section all 6 icons are present, then the cleaning products and cutlery, the the hairbrush and then the shower, washing machine and toiletries. #DisabilityAwareness #DisabilityLife #Disability #Disabled #ChronicIllnessAwareness #ChronicallyAwesome #ChronicallyFabulous #ChronicIllness #InvisibleIllness #ChronicallyIll #Spoonie #SpoonieLife #SpoonieCommunity #NoSpoons #Unchargeables #ChronicFatigue #ChronicPain #SocialCare #SelfCare #SelfCareSunday #CheckYourPrivilege #AccessIsLove #Carers #Inclusion #BabeWithAMobilityAid #CripplePunk #DisabilityAdvocacy #Spoonies #TheFutureIsAccessible #ChronicallyBadass https://www.instagram.com/p/CTqPilhJAt7tZiZ5cHG2ly8SQaxoGJ5VX1_JK00/?utm_medium=tumblr

[jemmabrown]

So very true! Repost from @___mrs___v___ using @RepostRegramApp - Trying to hold my shit together but I don't think I'm succeeding. I feel like my stomach and intestines are having a brawl and both losing. I have a migraine that has lingered for two days and worsens if I move my neck. I feel sick and exhausted and in pain. . . . #spoonie #unchargeables #chargie #chronicillness #chronicillnesswarrior #eds3 #heds #ehlersdanlossyndrome #pots #posturalorthostatictachycardiasyndrome #pcos #polycysticovariansyndrome #sleepapnoea #sleepdisorder #mcas #mastcellactivationdisorder #bileacidmalabsorption #bilesaltmalabsorption #questran #BAM #gastritis #hiatushernia #ibs #migraine #arthritis #osteoarthritis #sacroiliitis #chronicillnessmeme https://www.instagram.com/p/BqHsVN_Bq3h/?utm_source=ig_tumblr_share&igshid=govbs12cqjrr

[roachzrivia]

Honestly being sick is so damn expensive